Monday, 26 September 2016

2016 BMSTC Satisfacton Results

Thank you to everyone who took the time to complete our satisfaction survey.  We are delighted with the overwhelmingly positive response and look forward to developing some of your ideas.
You can read the full survey results here.

Introducing Pete Bowsher as the new BMSTC Chairman!

We are delighted that Trustee, Pete Bowsher, has stepped up as BMSTC Chairman to replace Yvonne.
A message to you from Pete:
I am very honoured to accept the role of chairman of trustees for the Therapy Centre. I have been a member since diagnosis in 2001 and after retirement from the Royal Air Forcer Regiment in 2005 have been receiving regular and excellent therapies that have really assisted my ability to maintain my independence.

I spent five years on the committee of the military support group for those that have served and are affected by MS aided by MS National, I then became a trustee of the centre some 10 years ago. I can assure you all that the Berkshire Therapy Centre stands head and shoulders above the many centres that I have visited across the country. I have on many occasions declared it to be a centre of excellence, due to what it provides for those with MS and those that are affected by MS and of course the quality of all staff and therapists that make up the professional team that support us all.

I will endeavour to be a good chairman and will be there for all.

Regards

Pete

Yvonne Parks steps down as BMSTC Chair and into our new Events and Community Fundraiser post!

We are delighted to welcome Yvonne to our staff team and wish her the best of luck! 
A message to you from Yvonne:
"My names Yvonne Parks, some of you may already know me or seen me around the centre over the years. I have been involved with the BMSTC since 2008 having been diagnosed with MS in December 2007.

Firstly, I became a member of the centre in February 2008 and attend the centre for oxygen therapy twice a week and physiotherapy when required. Over the years I have helped with fund raising and supported our members and fund raisers by attending charity events such as the Reading marathon, rugby events, street collections and charity dinners, with help at the street collections from my two dogs Alfie & Molly, who have their own MS Therapy Centre tabards and have actually helped to increase my collection rate.

After a few years I was honoured to be asked to join the board of trustees, who do a great job in keeping the centres best interest at heart. Having been in this role for over 5 years, in 2015 I was even more delighted to be asked to become chairman of the centre and took over from Ian Languish at this year’s AGM.

In August 2016 the part time role of Community Fund Raiser became available, for which I applied and delighted to say, was successful. I looked at this as an opportunity to become more involved with fund raising along with Sam and her team and to use my skills to add to the great work the team already do on a day to day basis. Due to being successful with my application unfortunately, my time as chairman was very short lived and I had to resigned.

However, I feel very excited about my new position which starts on Monday 26th September 2016, I see this as a great opportunity to help and support the already successful team at the BMSTC.
My family and I feel passionately about supporting the centre, not just because of my diagnosis but for all of you too, we are all in this together and I am delighted to be given the opportunity to work with you all and meeting you all more on a daily basis.

Best wishes for great future
I look forward to seeing you all on Monday
Yvonne"

Go Loch Ness starts today raising funds for Physiotherapy!




Speak to Sam or Henriette to find out how you can join in on 0118 901 6000 or email samantha@bmstc.org

More than £10 million to be spent on progressive MS research

Source MS Society:

The International Progressive MS Alliance has awarded three £3.6 million grants to researchers accelerating the pace of progressive MS research.

The Alliance is a worldwide collaborative of MS organisations co-founded by the MS Society. More than 2.3 million people around the world live with MS and more than one million of those have a progressive form of the condition.  Read on.

Antioxidant Lipoic Acid Appears to Slow SPMS Patients’ Neurodegeneration

Source Multiple Sclerosis News Today:

A pilot study exploring the antioxidant lipoic acid in patients with secondary progressive multiple sclerosis (SPMS) demonstrated that treatment for two years reduced the speed of brain tissue loss and improved the patients’ walking speed.  Read on.

Need help completing your PIP Form?

 Communicare can help with advice, information and support.:

"We can offer assistance with all matters benefits related.

We are able to complete benefit checks for you to assess what benefits you are entitled to and what level of payment you can expect.

We can assist you with benefit claims, both on-line applications and paper applications.

We can advice you on Mandatory Reconsideration for benefits and help you prepare for appeal."  For more information click here. http://www.communicare.org.uk/benefits-checking/

2 Rounds of Lemtrada Seen to Effectively Treat MS Relapses for Years

ECTRIMS Multiple Sclerosis News Today:

Lemtrada (alemtuzumab) as a first treatment option for relapsing multiple sclerosis (MS) patients reduced relapse rates and disability progression throughout a study period of six years — although most patients received treatment only in the first two years. The study showed that Lemtrada has the potential to harness disease activity in the long run.  Read on.

Friday, 23 September 2016

BMSTC Centre Feedback Survey will close on Monday 26th September

Thank you to everyone who has completed our feedback survey.  There is still time for your views to be heard - forms are available at the Centre or online click here It  is your Centre and this is your chance to have your say!

We will publish the results later in the autumn. 

Many thanks for your help.

Wednesday, 21 September 2016

Volunteers needed to help with APS Therapy

Action Potential Simulation (APS) is a relative new pain relief treatment offered at the Berkshire MS Therapy Centre. It is a non-invasive electrical treatment. The treatment takes place 3 times a week over an 8 week period. Each user get a fully detailed treatment plan drawn up by the physiotherapist showing where to place the electrodes. The following sessions are run by volunteers. This is where we need your help. During the sessions the volunteer will help to place the electrodes and set the dosage according to the treatment plan. There will always be a staff member available should there be any doubts.

We run the therapy Monday to Friday from 10.00. We are especially keen to get some help Tuesdays and Thursday.

Please visit the following website for further information about APS: http://www.painfreepotential.co.uk/.

If you are interested in helping us or have any questions please contact Mohamed or Henriette on 0118 901 6000 or email henriette@bmstc.org or mohamed@bmstc.org


Tuesday, 13 September 2016

MS Patient’s Pick of the Week’s News: Myelin Repair, Shape Changers, Misdiagnoses, and Virtual Reality

Source Multiple Sclerosis News Today:

Here is my Pick of the Week’s News, as published in Multiple Sclerosis News Today.

Can you spare two hours to support the Berkshire MS Therapy Centre? We need you!

Could you help collect at Lidl, Oxford Road, Reading on either Friday 23rd or Saturday 24th September?

Please spare a couple of hours to support the Centre.  If you can help contact Tracy or Kirsten on 0118 901 6000 or email tracy@bmstc.org  or kirsten@bmstc.org

Thank you!

Thursday, 8 September 2016

Do you enjoy working on your balance, core stability and flexibility?

Why not try the Pilates class at BMSTC, Thursdays 10.00 - 11.00am

For people with MS Pilates can be of great benefit in numerous ways, in particular with improving balance, gait problems (upper and lower limb strengthening), facilitating good breathing, strengthening the core (improving trunk stability), creating better posture awareness, helping to focus the mind and the body together, relaxation, stretching and strengthening of specific muscle groups and increasing correct muscular and neurological balance alignment and patterning.
 
Please contact Henriette on 01189016000 or henriette@bmstc.org

Earlier Detection, Timely Treatment for MS, Parkinson’s Possible with Virtual Reality Tool.

Source Multiple Sclerosis News Today:

Scientists at Russia’s Tomsk Polytechnic University (TPU) and Siberian State Medical University (SSMU), both in Tomsk, have developed a diagnosis system for neurodegenerative diseases in the early stages. The system uses virtual reality (VR) technology to immerse a subject in a virtual environment during functional tests designed to detect early symptoms of diseases like multiple sclerosis, Parkinson’s disease, and others. The researchers change the virtual environment parameters and record results in the subject’s movements. The technical stage of the joint project is expected to be completed in 2017.  Read on.

Our Tracy and Amy will be running a total of 39.3 miles between them!

Our Tracy and Amy will be running the Bournemouth Half and Full Marathon on the 2nd October - a grand total of 39.3 miles between them! If you would like to show them your support, please see their Virgin Money Giving page

 Go girls, you can do it!

MS Documentary seeking interviewees

I am a student at The London Film School producing a documentary film about the experience of water therapy for MS patients and we are looking for interviewees.

The film seeks to convey the benefits of the therapy, in particular, the way it creates a sense of freedom and escape for patients suffering from MS.

As a part of the documentary, we are interviewing MS patients about their own personal experience and understanding of water therapy and about how they live and cope with having MS in general. You don't have to have personally experienced water therapy but it is preferred.
Aside from the humanitarian benefit of participating, we can offer to pay those chosen as interviewees a fair sum.

 Let me know if you’re interested. I can be contacted via email at this address: erik.bloom@lfs-students.org.uk

Thank you!

Erik

Half of people with MS have faced ‘unacceptable’ mistreatment

Source MS Society:
Almost half (45%) of people with MS feel they have experienced mistreatment or stigma because of their symptoms, according to our most recent survey.
Our report showed that 49% of people with MS have been accused of being drunk because they were having trouble walking. Another 47% say they’ve been told they are exaggerating the extent of their MS because they ‘look so well’.  Read on.

MS Trust launches campaign to fund new MS nurses in areas of greatest need.

Source MS Trust:
A new report published today by the MS Trust shows that 64 per cent of people living with MS in the UK – around 68,000 people – live in areas where there aren’t enough MS nurses to provide vital care and support. This is why we’re launching a campaign to fund new nurses in the areas of greatest need and to make sure no one has to manage MS alone.  Read on.

Christmas Cards!


A debate is raging at the Centre - is it too early to buy Christmas Cards? BMSTC has a lovely range of Christmas Cards but if you see some you like please be quick as it you don't want miss out on your favourite design! Just £3.95 and all profits to support the Centre

Friday, 2 September 2016

Thank you!

Thank you to everyone who came in to help with our photographer this week and please accept our apologies for any disruption to your treatments.

We will make the photographs available for people to view or download for anyone who wants their own copy in due course.  Some of the images will be used on our new website which is being developed and also for other publications and fundraising applications.

Once again, many thanks for all of your help and support.

Breast cancer drug shows potential to repair myelin

Source MS Society:

Researchers at the University of Cambridge have found a new way to repair myelin using a well-established treatment for breast cancer.

Tamoxifen has been used to treat breast cancer since the early 1970s, but research has revealed some previously unknown benefits of the treatment.  Read on.

Interesting article on Oxygen Therapy

Source The Conversation.com:

There is no cure for multiple sclerosis (MS) yet. As a complex neurodegenerative disease of the brain, it is incredibly difficult to treat. Despite the development of new and sophisticated therapies to control the inflammation and physical symptoms of the disease, these treatments don’t work for everyone. This is because MS comes in many guises and one treatment does not fit all. Perhaps for this reason people with MS are turning to alternative means of controlling their condition.  Read on.

Wanted - Unwanted Gifts!

Do you have any unwanted gifts, or nearly new items that we could sell in our shop at the Centre? If so please bring them in for Ros to display. (Please note we are unable to accept electrical items.) Many thanks!