Thursday, 22 October 2015

Want to take part in a clinical trial?



Note: For people with relapsing remitting MS or Secondary progressive MS only.


Want to take part in a clinical trial? In recognition of your time involved in this study you will receive £1,250 and all your travel needs will be organised by Trials4Us. BMSTC will also receive a donation.


Trials4Us are carrying out an important clinical trial of a new treatment for people with RFMS. This is a validation study to check that a particular imaging technique works. 


There are no expected benefits to you from participation in this study, it is purely for research purposes. However, by taking part in this study, you may be helping future patients by contributing to medical knowledge about RFMS.  Find out more here.

Study on Biotin for Secondary and Primary Progressive Forms of Multiple Sclerosis

Dr. Daniel Kantor talks about the MD1003 Trial analysis on Biotin for Secondary and Primary Progressive Multiple Sclerosis.  Watch here.

Biogen says multiple sclerosis drug trial for Natalizumab was unsuccessful.

Source Market Watch


Biogen Inc. said Wednesday that a late-stage trial of a drug to treat of secondary progressive multiple sclerosis was unsuccessful. The trial of Natalizumab found that the drug was "well-tolerated" by patients but did not meet its primary and secondary endpoints. "While we're disappointed with these results, we believe this research will provide the MS community important insights into this more advanced patient population," said Alfred Sandrock, group senior vice president and chief medical officer at Biogen, in the press release. Shares of Biogen rose 10% Wednesday after the company beat third-quarter earnings expectations




Are you an online shopper?

Shop with Give as you Live!  Every time you shop you raise money for BMSTC. Visit http://give.as/charity/berkshiremstherapycentre and we'll get a donation at no cost to you! It is very simple and perfect for all your Christmas shopping.

Seeking Merry Santas

The countdown to Christmas is on and we are looking for people to join the BMSTC Merry Santas at this years Reading Santa Run on 6th December. Santa suits are included but you need to bring your own Christmas Cheer...For more details and to book your place: http://www.bmstc.org/Events/Christmas.aspx

ECTRIMS 2015 round up

Source MS Trust


ECTRIMS (European Committee for Treatment and Research In Multiple Sclerosis) hosts the world's largest conference devoted to basic and clinical research in MS.

This year's meeting took place in Barcelona from 7-10 October and featured a wide range of presentations, posters and reports of new and on-going research.  Read on.

Double your donation for free with Local Giving "Grow your Tenner"

Are you donating for your treatment this week? Why not donate via www.localgiving.com/bmstc and 'Grow your Tenner'? Every donation up to £10 will be doubled! Donations of over £10 can be split into different payments up to £50!

Need help with your PIP?

Citizens Advice offer assistance with information on benefits and tax credits.  There is also information about council tax and housing costs, national insurance, payment of benefits and problems with benefits.  See their website for more information. https://www.citizensadvice.org.uk/benefits/


If you live in Reading there is also another organisation who could help called CommuniCare, see their website for information. http://www.communicare.org.uk/

Tuesday, 20 October 2015

Local Giving Grow your Tenner Campaign

Local Giving are offering a matching scheme for a limited period of time.

Donate £10, Gift Aid it and grow your tenner ‪will turn £10 into £21.67? Help us provide double the support! https://localgiving.com/donation/bmstc


Thank you for your support!

Monday, 19 October 2015

Saturday 21st November BMSTC Christmas Fair - Sir John Madejski will be there!

We are delighted that Sir John Madejski, BMSTC Patron, will officially open this year's Christmas Fair to be held on Saturday 21st November at 1.00 - 3.00pm

There will be a variety of Christmas cakes, bakes and puddings for sale alongside festive gift and craft stalls.

Tombola, raffle and refreshments will be on offer and Santa will be coming along to pay us his annual visit!

Volunteers needed to help  on the day, desperately need a man (or woman!) with a van!
Please come along and support our wonderful BMSTC Link group who work very hard to organise our Christmas and Summer Fayres.   For more click here!

Need help with benefit forms such as PIP?

Citizens Advice offer assistance with many different issues including benefit forms and PIP.  For more information visit their website here. 

Communicare are charity aiming to help people in Reading by offering information, advice and support. Official documents for things like PIP (personal independence payment), ESA (employment support allowance) or for a blue badge etc. can be daunting. These support services know the best terminology to use in applications so we recommend using them to make a claim or to raise an appeal if you have had a claim rejected.  Visit their website here.

 Thanks to MSquared for this info :0)




Exercise benefits mental, physical well-being in MS

Interesting article on the benefits of exercise for people with MS. Come and join us for Tai, Chi, Yoga, Pilates, exercise classes plus much more! www.bmstc.org call 0118 9016000 or email ms@bmstc.org.  Read article here. 

Signed Ireland Rugby shirt raises £420!

Have you seen the Berkshire MS Therapy in the Reading Chronicle this week? We are thrilled to say the auction has now finished and raised £420 for BMSTC. Thank you to the Irish rugby team for their kind donation!  See article here!

Reading Station Collection Success!


A massive thank you to all our wonderful collectors for helping at Reading Station on Friday and Saturday. We are thrilled to say that we have raised over £2,000, a lot more than last time!
Thank you to everyone who collected – see you next time!

Santa Run Sunday 6th December!


It is just 10 weeks until Christmas and if you are looking for something to put you in the festive mood, why not join the BMSTCs Merry Santas at the Reading Santa Run on Sunday 6th December? For more information visit http://www.bmstc.org/events/christmas.aspx

Tuesday, 13 October 2015

Berkshire Carers Talk at BMSTC 14th January 2016

Berkshire Carers will delivering a talk at BMSTC on Thursday 14th January from 12.00 - 1.30.  This event is being organised by our Partners and Carers group and is open to anyone caring from someone with MS.  A light lunch will be provided.


Places are limited and are available on a first come first served basis.  To register your place please contact Barbara Annells on 0118 967 7022 or email her b.annells@gmail.com



Monday, 12 October 2015

Take part in a MS research study (relapsing remitting) and get a £15 Amazon Gift Voucher plus a donation to BMSTC!


Opinion Health, an independent research agency based in London, is currently inviting people diagnosed with multiple sclerosis to take part in an online survey. This survey is designed to provide a better understanding of your experience of the treatment you are receiving as well as your treatment preferences.


The survey should take around 20 minutes to complete. As a token of our appreciation for your time and interest, you will receive a £15 Amazon Gift Card if you successfully complete the survey.



IMPORTANT: There are some interactive elements in the survey designed to make it more interesting for you. Therefore we would strongly recommend accessing and completing this survey via a desktop computer or a laptop.

Please let us know if this is a problem for you. One of our team will be more than happy to assist you.



Please click on the link below for more information:
http://survey.opinionhealth.co.uk/uc/8018L/?a=1&b=AN&c=AS&d=40

If you have any questions about this study, please feel free to contact us either by email on info@opinionhealth.com or by phone on 0207 486 6700.


Many thanks in advance,
OH Research Team
Opinion Health
11 Poland Street
London W1F 8QA
 +44 (0)207-486-6700
info@opinionhealth.com
http://www.opinionhealth.com

Thursday, 8 October 2015

Help needed please!

Are you free on Saturday 17th October 2-4pm? We urgently need one or two people to help us collect at one of our local supermarkets - Asda in Honey End Lane,Tilehurst. We don't want to miss this opportunity to raise funds and awareness at one of our nearest stores! If you can help, please call Kirsten or Tracy at the Centre on 0118 901 6000 or email tracy@bmstc.org or kirsten@bmstc.org 
Many thanks.

Win a signed Ireland Rugby Shirt!


Last week the lovely Irish Rugby World Cup player Jared Payne was using Oxygen Therapy at BMSTC to help him get back on his feet for the rest of the tournament. As a thank you the team have given us a signed jersey - and we want to give you a chance to win it and take home a little bit of World Cup history! Place your bid at http://www.bmstc.org/Events/Ireland.aspx

A new focus on brain health

Source MS Trust

ECTRIMS is the European Committe for Treatment and Research in Multiple Sclerosis. Every year they hold the world's largest conference on MS research and this year's event is taking place this week in Barcelona. Amy Bowen, our Director of Service Development, reports on what is widely expected to be the most significant event for many years.  Read on. 

New global report on early treatment launched.

Source MS Society

A new international report on early treatment has been launched today. Brain health: time matters in multiple sclerosis, was written by a global expert group led by UK neurologist Professor Gavin Giovannoni.

This follows the MS Society’s consensus paper on early treatment released on Wednesday 30 September.  Read on. 

"People's Strictly star named a Woman of the Year" - Congratulations Trishna!

Source Bucks Free Press:

A Marlow campaigner turned TV star has said she is ‘honoured’ to have been selected as a Woman of the Year in recognition of her contribution to society.

Multiple sclerosis ambassador, Trishna Bharadia, has been selected to join 400 others at the 60th anniversary Women of the Year lunch later this month in celebration of her work with various MS charities.  Read on. 

Living Well Gym

Source Wokingham.gov

Wokingham council have opened a second Live Well gym aiding treatment of those living with long-term health conditions. The gym, based at Bulmershe Leisure Centre in Woodley boasts state-of-the-art equipment to improve fitness, mobility, strength and functional movements for people with a range of long-term conditions including MS.  For more info click here.

MS Nurse Drop-in Clinic at BMSTC

MS Nurse drop in clinic at BMSTC on Thursday 19th November in the afternoon. Call 0118 901 6000 if you would like to arrange an appointment. (Please note patients of Royal Berkshire Hospital only.)

Flu jab study

Source MS Trust:

As well as the symptoms caused by 'flu', the fever associated with the infection can lead to a worsening of multiple sclerosis symptoms for those people with MS who are adversely affected by heat.

NICE guidelines state that people with MS should be offered immunisation against influenza as infections may be associated with worsening of symptoms or could trigger relapse.

A study of 49 people with MS reported that five experienced fever or flu-like symptoms after vaccination. No-one reported any new neurological symptoms or had complications or needed hospitalisation.  Read on. 

Thursday, 1 October 2015

Shoprider Sovereign available for a donation to BMSTC



Please email pippa@bmstc.org if you would like further details.

New MS Trust Website

We love the new MS Trust website - feel free to give them some feedback on their new design.  https://www.mstrust.org.uk



Happy 50th Birthday to our Tracy the birthday princess!


'Multiple sclerosis drugs should be offered earlier'

Source MS Society:

People with the most common form of multiple sclerosis should be offered drug treatment earlier, a charity says.

The Multiple Sclerosis Society's report suggests there is a "wait-and-see" approach by doctors which needs to end.

But drug watchdog NICE says while this "disease-modifying therapy" can help in some cases, the benefits need to be weighed carefully against side-effects. Read on. 

Raise money for BMSTC while you shop online with Give as you Live

Don't forget you can raise money for BMSTC while shopping online with Give as You Live. Take the hassle out of Christmas shopping and buy online from the comfort of your home!

Visit https://www.giveasyoulive.com



Genentech have announced positive results from a phase III study of ocrelizumab in primary progressive MS

Source Pharmiweb.com

Genentech, a member of the Roche Group (SIX: RO, ROG; OTCQX: RHHBY), today announced positive results from a pivotal Phase III study that evaluated the investigational medicine ocrelizumab in people with primary progressive multiple sclerosis (PPMS).  Read on.