Thursday, 24 September 2015

Updated factsheets for Disability Living Allowance


The Department for Work and Pensions (DWP) have just updated a couple of factsheets for Disability Living Allowance (DLA) ending and the need to claim Personal Independence Payment (see links below). From October, DLA recipients in Reading will start to receive a letter from DWP about DLA ending.

https://www.gov.uk/government/publications/disability-living-allowance-is-ending-claimant-journey


https://www.gov.uk/government/publications/disability-living-allowance-is-ending-claimant-factsheet

You may wish to share these links with your networks, contacts and adults you know who are in receipt of DLA.

If you have any queries, please contact us.

Regards

Nina Crispin
Consultation & Engagement Officer
Adult Care and Health Services
Reading Borough Council
Level 2, Civic Offices,
Bridge Street, Reading, RG1 2LU
T: 0118 937 2383
Working days: Monday, Wednesday, Thursday
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Christmas Cards

We have a wonderful selection of Christmas Cards for sale at the Centre with proceeds going to BMSTC. 


As usual they are selling like hotcakes, so make sure you get yours early to save disappointment!

Take part in a survey and get a £15 Amazon gift card!

Invitation: Multiple Sclerosis Patient Survey


Opinion Health, an independent research agency based in London, is currently inviting people diagnosed with multiple sclerosis to take part in an online survey. This survey is designed to provide a better understanding of your experience of the treatment you are receiving as well as your treatment preferences.


The survey should take around 20 minutes to complete. As a token of our appreciation for your time and interest, you will receive a £15 Amazon Gift Card if you successfully complete the survey.

IMPORTANT: There are some interactive elements in the survey designed to make it more interesting for you. Therefore we would strongly recommend accessing and completing this survey via a desktop computer or a laptop.


Please let us know if this is a problem for you. One of our team will be more than happy to assist you.

Please click on the link below for more information:
 
http://survey.opinionhealth.co.uk/uc/8018L/?a=1&b=AN&c=PA&d=1



If you have any questions about this study, please feel free to contact us either by email on info@opinionhealth.com or by phone on 0207 486 6700.


Many thanks in advance,
OH Research Team
Opinion Health
11 Poland Street

London W1F 8QA

 +44 (0)207-486-6700info@opinionhealth.com
http://www.opinionhealth.com

Wednesday, 16 September 2015

MS sufferers' health damaged by benefits tests, survey finds

Source MS Society:


Many multiple sclerosis sufferers required to undergo assessments to claim disability benefits are having their health damaged as a result, a survey suggests.

The MS Society found that nearly half (48%) of people with the disease of the nervous system who had an assessment for Employment Support Allowance (ESA) felt the process caused their condition to deteriorate or relapse. Just over a third who had a face-to-face assessment for Personal Independence Payment (PIP) said the same. 
Read on.

Charities get ready to face the Dragons

Source Newbury Weekly News:

BMSTC is hoping to face the dragons and introduce a new system of pain relief for people with MS. Made possible by the help of the Greenham Common Trust and the Pitch to the Panel.


"LOCAL charities and groups are waiting to see if they will face ‘dragons’ in order to win much- needed grant money.

Twelve local causes have entered Greenham Common Trust’s ‘Pitch to the Panel’, which will see the six shortlisted causes receive a share of a £100,000 grant from the trust." Read the 
article here.

Rugby tickets for the 19th September

One of our members would like to re-home 4 Rugby World Cup tickets for the 19th September, France vs Italy game at Twickenham. 


He would like to sell for the face value of £175 each. Apparently they are excellent seats (not wheelchair accessible, sorry!) If you are interested please email pippa@bmstc.org

Thank you to everyone who supported this years Walking for MileS

Thank you very much to all of the walkers and volunteers who turned up on Sunday 13th September to support our annual event in Henley-on-Thames.


The sun shone and we hope that everyone had as much fun as we did!

Reception at Downing Street for MS Society volunteers

Source MS Society:


Samantha Cameron kindly hosted a reception at No.10 Downing Street today to thank and recognise some of the people who have given their precious time, energy and commitment to the MS Society over the years. MS Society Volunteers and staff nominated people to attend from across the UK.  Read on.

MS Nurse Clinic at BMSTC

MS Nurse clinic at BMSTC - Appointments are available on Thursday 15th October. 


Please call 0118 901 6000 to book an appointment. (N.B. It is not possible for the MS Nurse to see members who are not eligible to be seen by consultants within the Royal Berkshire NHS Trust)

You maybe entitled to a free eye test at home

Did you know you are entitled to a free home eye test if you cannot visit a high street optician unaided?


Free Eye Test from Visioncall Home Visiting Opticians
Benefits to being tested at home:
  • In a comfortable environment you are used to
  • Don't have to worry about how you are going to get to an opticians
  • We use the latest mobile technology and an exclusive digital test chart to ensure more accurate prescriptions
  • We have a large range of frames available that may be free of charge depending on benefits
For more information click here.

Congratulations to our friends at the MS Trust

Source MS Trust:




Secondary progressive MS book success in BMA awards.


The MS Trust book Secondary progressive multiple sclerosis was highly commended in the BMA Patient Information Awards, which were announced last night (7 September).  For more information    

Yoga classes resume

Our Monday evening MS Yoga class started up this week. We also offer a Friday afternoon MS Yoga Class.

Yoga is uniquely able to assist people with MS. Its gentle holistic activities, and breathing and meditation techniques, improve and help maintain energy flow with minimal physical effort.  For more information click here.

If you would like more information or to join either of these classes please email pippa@bmstc.org or give me a call on 0118 901 6000.

Wednesday, 9 September 2015

Interesting article on the benefits of Tai Chi - we are starting a class at BMSTC!


Interesting article from the Chartered Society of Physiotheray (CSP) on the benefits of Tai Chi.


We will be starting a MS Tai Class on Thursday 24th September 1 - 2pm for 8 weeks. Please email pippa@bmstc.org if you are interested in joining. 


Read the CSP article here

Tuesday, 8 September 2015

Living Well with MS

Source Sue Ryder Nettlebed:


Living Well With MS

"Our specialist Living Well with MS programme has been designed for those living with multiple sclerosis, and focuses on providing the information, advice and support you need to improve your sense of wellbeing. The programme will run every Monday from 11am – 1pm for 6 weeks, and starts on Monday 28 September, 2015."  For more
click here.

Windows 10 arrives at BMSTC


One of the pcs in the cafe area at the centre has been updated from Windows 8 to Windows 10. It's a touch screen pc so can you can try out the latest technology with the latest software. Windows 10 is like an upgrade to Windows 7 so if you were not so keen on Windows 8, you may be happier with Windows 7. Please try it our when you are next at the centre if you like.

Monday, 7 September 2015

BMSTC Christmas Cards have arrived!

Our Christmas cards sold out early last year so be sure to buy yours soon. There are many designs to choose from and with only 16 weeks until Christmas can you wait any longer?! All profits will go towards the work of BMSTC

Sunday, 6 September 2015

The latese MS Research news from down under

Source MSRA:


Our Mission is to accelerate Australian MS research toward the prevention, better treatments and a cure for MS.


We will achieve this by working in partnership with relevant medical research institutes and scientists around Australia, encouraging collaborations and focus on our strengths in this research.
MS Research Australia is ultimately working towards "Freedom from MS".   Read on





Friday, 4 September 2015

Invitation to take part in a Focus group

Invitation to take part in a Focus group

Monday 14th September 2015

For those with personal experience of:
‘My experiences of being diagnosed with a long term neurological condition’


A discussion between patients and carers living in Wokingham, Reading and West Berkshire local authority areas (NHS Berkshire West) who have been diagnosed within 2014 or 2015 as having a
long term neurological condition, or who are awaiting a neurological diagnosis.


Arrivals from 13.45 hrs.
Focus group from14.00 – 1600 hrs

In a comfortable setting at Padworth (between Woolhampton and Theale)
To attend please contact John Holt on 01635 33582 johnmholtbsc@aol.com
 
Limited places, confirmed booking is essential, please.
Full details will be given about the venue when bookings are accepted.

For Sale Unused Landeez Beach Wheelchair

One of our members here at BMSTC has a Beach Wheelchair he would like to sell for £400. This has never been used and cost £1900 new!

"Landeez All-Terrain Wheelchair - Rediscover the many joys of outdoor living. With the Landeez all-terrain wheelchair you can enjoy life's simple pleasures."



The chair consists of:
a) the base

b) 2 x different length rear axels

c) 1 x spare axel

d) the brake.

e) a choice of 2 styles of pushing handles

f) 4 rear wheels, 2 fat and 2 slim

g) 4 front castors, 2 fat and 2 slim



If you are interested please contact pippa@bmstc.org and I will pass on your contact details to the seller.

Wednesday, 2 September 2015

How can we best give people information and advice about care and support?




How can we best give people information and advice about care and support?
Wednesday 7th October
2pm – 4pm
Committee Room 4a
Reading Borough Council Civic Offices, Bridge Street, Reading, RG1 2LU


People have told us that understanding their options about care and support is really important, but that it can be hard to know where to start.

The Council has a responsibility to make sure local people can get the information and advice they need – not only about our Adult Social Care services, but the wider services available to support people’s wellbeing in Reading.

You are invited to help us improve the information and advice that we offer, and the different ways that we make this available. We want to hear from you:

 What information would be most important to you in different situations?

How would like to find this information – on the internet, from a leaflet, through talking to someone on the phone or face to face?

How you would like to get advice about your situation, and who you would trust to give you this?

If you are interested in sharing your views – either attending the session above, or just giving some feedback – please email transformation@reading.gov.uk or phone 0118 937 2383.