Wednesday, 24 December 2014

Happy Christmas

The Centre will close today from midday until Monday 5th January 2015.


Best wishes to you all for a very Happy Christmas and a peaceful and healthy New Year!


The BMSTC Team :0)x

Cover4Life is falsely advertising

Source MS Trust:


We've been made aware that a website called 'Cover4Life' is falsely advertising a life insurance product from 'Your Life Protected' as being promoted by the MS Trust.

This company is using our logo without our permission and has no connection to the MS Trust. We have asked them to remove all references to our organisation.  Read on.

Monday, 22 December 2014

Recommended Voluntary Contributions

Every year the Trustees consider whether it is time to increase the requested voluntary contribution amount towards treatments at BMSTC.  There has not been an increase since 2004!  After careful consideration, and balancing income against expenditure, it has again been decided  not to increase these for 2015. 


The reason we have been able to do this is down to an excellent income from fundraising and savings made from efficiencies such as the installation of  solar PV, solar thermal, invertors and downsizing our gas boiler.


You may notice in our accounts that we received some legacy funding over the past few years. The Trustees decided that these most generous gifts should be directed towards enhancing the experience of our members at the Centre rather than used towards general running cost.  As such, we have been planning a full refurbishment of our building which will take place during the first half of next year.


Although we are able to continue with our current suggested voluntary contributions for 2015, it will become inevitable that we will need to increase this in the future.  Of course, you can always donate more than we request if you are in a lucky enough position to do so!


We would like to take this opportunity to say a big "Thank you" to everyone who has been involved in supporting our fundraising efforts.


Best wishes to you all for a very Happy Christmas and New Year!


Pippa



Wednesday, 17 December 2014

MSc Physiotherapy Research Project on measurement of walking ability


You are invited to take part in a research study which forms part of an MSc project in Physiotherapy. The study aims to investigate the relationship between the measures used to assess different aspects of a person’s walking ability. We want to see if the measures used commonly by Physiotherapists can predict how well a person with MS walks and participates within their home and social environment. The study will involve two data collection session at the MS Therapy Centre, each 20-30 minutes in total. The sessions will involve completion of 6 measures – 4 questionnaires, a 6 minute walk test and the wearing of a pedometer between sessions. If you are able to walk (including with the use of any mobility aid) and are not currently experiencing an exacerbation of your MS you could be eligible to take part. If you are interested in potentially taking part please email Sarah on om13slp@my.brunel.ac.uk and we will send you some more information. This study will benefit the MS community by providing some vital information to inform how therapists use measures of walking ability more effectively in the future.

Thank you for taking the time to read this and we hope to hear from you soon.

Sarah Peacock

Tuesday, 16 December 2014

Christmas closure

BMSTC will close on Wednesday 24th December at 1.00pm and reopen at 9.00am on Monday 5th January.


There will be a limited oxygen therapy service available during the closed period, please ask at reception for details.


Very vest wishes to one and all for a very Happy Christmas and a peaceful and healthy New Year!

Bone mineral density is reduced in people with MS

Source MSRA.org:
Evidence has been accumulating over recent years that people with MS are at increased risk of osteoporosis and bone fractures in comparison to the general population.
Osteoporosis is a progressive loss of bone minerals leading to fragile bones that are at greater risk of fracturing. It is common in the ageing population and particularly affects post-menopausal women due to hormonal changes that influence bone mineral density.  Read on.

The hidden lives of those who care

Source BBC:


While nobody sets out to be an unpaid carer, it is a job more than six million people currently perform, according to the 2011 Census. This hidden workforce, thought to save the economy £119bn a year, is drawn from all ages and backgrounds.  Read on.

Please support the Three Amigos!

Source Get Reading
Multiple sclerosis suffer Gregg Burgess-Salisbury, 43,  has run many races before, but is now in a wheelchair.  In next year's race he will be pushed along.  Read article here.
Donate here!  (The link in the article is broken!)

MS Society win award for ~Treat Me Right Campaign

Congratulations to the MS Society!

Treat Me Right campaign wins Public Affairs Award
Published date: 10 Dec 2014 at 10:50AM


The MS Society’s Treat Me Right campaign has won the inaugural Public Affairs Award for Voluntary Sector Campaign of the Year.

The Awards ceremony took place at the Park Plaza Riverbank in London on 9 December 2014.

The Treat Me Right campaign was up against Anthony Nolan’s Capes vs. Cancer, Cancer Research UK’s Voice for Radiotherapy, Leonard Cheshire Disability’s Make Care Fair and The Ramblers’ One Coast for All. Read on.

New Audio Guide - Just Diagnosed - an introduction to MS

Source MS Society:
https://soundcloud.com/ms-society-uk/sets/just-diagnosed-an-introduction-to-ms



Have your say about NHS Walk-in Centre in Broad Street Mall

healthwatch reading
Source NHS Berkshire Health Network:


Reading Walk-in Centre (RWC), located on the first floor of Broad Street Mall, Reading opened in August 2009. The service is provided by Assura Reading LLP in partnership with Virgin Healthcare. A five year contract was awarded with the option to extend for a further 2 years. The 5 year term of the contract expired in August 2014 but has been extended for a period of 2 years, with an end date of July 2016.  Read on.

Disability fund closure ruled lawful

Disabled man in office
Source BBC:

A government decision to close a fund that helps disabled people to live and work in the community has been ruled lawful by the High Court.


The Independent Living Fund (ILF) provides support for some 18,000 people and is worth £320m. The government plans to close it on 30 June 2015. Read on.

Royal Berkshire Hospital plan to move Caversham Ward to Woodley Ward

Source Get Reading:
Doctors and patients are distressed by a plan to move Royal Berkshire Hospital’s stroke unit from its purpose-built ground-floor ward.
The hospital trust says it will provide improvements for elderly patients with hip fractures.
The plan is to move the service from the Caversham ward, opened by the Queen in February 2006, to Woodley ward on an upper floor.  Read on.

Neurosupport runs the Employment and Community Service to help and advise people affected by a neurological condition

Worried about your job?Receiving a diagnosis of a neurological condition, or experiencing a brain injury can be a very distressing experience and worries about being able to keep your current job are common.
Our trained advice and guidance workers are experienced in helping people with neurological conditions to retain their existing job wherever possible. You can telephone or email us for initial advice at any time. Our advisors will usually then arrange an appointment to see you and discuss your issues in greater depth. They can liaise with employers, talk to managers, offer advice on adaptations to your workplace or working day, which may enable you to continue with your work and many other issues.  Read on.

Some training courses provided by Earley Crescent Resource Centre

Tuesday, 2 December 2014

Today is Giving Tuesday!






GivingTuesday (2nd December) is a global day of giving. After the sales of Black Friday and the online shopping boom on Cyber Monday, #GivingTuesday is an opportunity to come together to show the world why it’s good to give. Whether it’s making a donation, volunteering your time or just spreading the word at the start of the Christmas shopping season, #GivingTuesday is a call to action for everyone who wants to give something back


If you would like to make a donation to BMSTC please click here!  


Thank you to all of our supporters and volunteers who give so much time, support and money to keep us going. We couldn't do it without you! :0)

Fingolimod (Gilenya) not effective in primary progressive MS

Source MS Society:


"Note - While these results are disappointing, they do not affect the proven effectiveness of Gilenya in relapsing remitting MS."


Novartis - the pharmaceutical company that manufacture Gilenya - carried out a global phase 3 clinical trial involving 940 people with primary progressive MS, known as INFORMS. The trial aimed to evaluate the effect of Gilenya (in the form of a once daily tablet) on delaying the progression of disability compared to a dummy drug.


Novartis have announced that results from this trial indicate that Gilenya is not an effective treatment for primary progressive MS. The full results will be presented at an upcoming scientific conference. Read on.

MS Society responds to fitness for work announcements

Source MS Society:


A major independent review was published yesterday on the Work Capability Assessment – the test designed and used by the Department of Work and Pensions (DWP) to determine the entitlement of disabled welfare claimants to Employment and Support Allowance (ESA)Read on.

BMSTC display at Jacksons Corner in Reading Town Centre


Thanks to community project Reading Bike Kitchen for letting us promote BMSTC in your fantastic window at the old Jacksons department store!
Fingers crossed we recruit some riders for next years Prudential RideLondon-Surrey event!

Tecfidera now available from the NHS in England and Wales

Source MS Society:
Published date: 27 Nov 2014 at 1:01PM

From today Tecfidera, a treatment for relapsing remitting MS, will be made available on the NHS in England and Wales; it is already available in Northern Ireland and Scotland.   Read on.

MS Study Day

MS STUDY DAY 2014: AN OVERVIEW
Who was the event aimed at?
The study day was aimed at people newly diagnosed with MS, interested in therapies or currently on therapies.

When did it happen?
The event was held on Friday, 26th September 2014... at Twickenham Stadium.

I was unable to attend, can I still view the content?
If you were unable to attend, the event was recorded. You can view a selection of talks by clicking on the video links here.

MS Team saving time using iPads for remote consultations

Source MS Trust:


An MS team based at Morriston hospital, Swansea, is saving a significant amount of time by using iPads for remote consultations with patients rather than travelling to see them in clinics.


Following the success of a pilot iPad project involving seven patients, the south west Wales MS team plans to offer remote consultations to patients who are prescribed disease modifying drugs.  For more click here.

Tell us in a one minute video a change you want to see happen in 2015!!!

Source Disability Horizons:
All too often, disabled people are excluded because of physical, attitudinal and procedural barriers. Disability Horizons is tired of this unnecessary discrimination and is ready to act. With your help, we are going to tell the world about these daily injustices and demand change. We want disabled people to be heard by government, media, businesses and general society. Change must begin. It begins now, with you. - For more click here.