Wednesday, 24 December 2014

Happy Christmas

The Centre will close today from midday until Monday 5th January 2015.


Best wishes to you all for a very Happy Christmas and a peaceful and healthy New Year!


The BMSTC Team :0)x

Cover4Life is falsely advertising

Source MS Trust:


We've been made aware that a website called 'Cover4Life' is falsely advertising a life insurance product from 'Your Life Protected' as being promoted by the MS Trust.

This company is using our logo without our permission and has no connection to the MS Trust. We have asked them to remove all references to our organisation.  Read on.

Monday, 22 December 2014

Recommended Voluntary Contributions

Every year the Trustees consider whether it is time to increase the requested voluntary contribution amount towards treatments at BMSTC.  There has not been an increase since 2004!  After careful consideration, and balancing income against expenditure, it has again been decided  not to increase these for 2015. 


The reason we have been able to do this is down to an excellent income from fundraising and savings made from efficiencies such as the installation of  solar PV, solar thermal, invertors and downsizing our gas boiler.


You may notice in our accounts that we received some legacy funding over the past few years. The Trustees decided that these most generous gifts should be directed towards enhancing the experience of our members at the Centre rather than used towards general running cost.  As such, we have been planning a full refurbishment of our building which will take place during the first half of next year.


Although we are able to continue with our current suggested voluntary contributions for 2015, it will become inevitable that we will need to increase this in the future.  Of course, you can always donate more than we request if you are in a lucky enough position to do so!


We would like to take this opportunity to say a big "Thank you" to everyone who has been involved in supporting our fundraising efforts.


Best wishes to you all for a very Happy Christmas and New Year!


Pippa



Wednesday, 17 December 2014

MSc Physiotherapy Research Project on measurement of walking ability


You are invited to take part in a research study which forms part of an MSc project in Physiotherapy. The study aims to investigate the relationship between the measures used to assess different aspects of a person’s walking ability. We want to see if the measures used commonly by Physiotherapists can predict how well a person with MS walks and participates within their home and social environment. The study will involve two data collection session at the MS Therapy Centre, each 20-30 minutes in total. The sessions will involve completion of 6 measures – 4 questionnaires, a 6 minute walk test and the wearing of a pedometer between sessions. If you are able to walk (including with the use of any mobility aid) and are not currently experiencing an exacerbation of your MS you could be eligible to take part. If you are interested in potentially taking part please email Sarah on om13slp@my.brunel.ac.uk and we will send you some more information. This study will benefit the MS community by providing some vital information to inform how therapists use measures of walking ability more effectively in the future.

Thank you for taking the time to read this and we hope to hear from you soon.

Sarah Peacock

Tuesday, 16 December 2014

Christmas closure

BMSTC will close on Wednesday 24th December at 1.00pm and reopen at 9.00am on Monday 5th January.


There will be a limited oxygen therapy service available during the closed period, please ask at reception for details.


Very vest wishes to one and all for a very Happy Christmas and a peaceful and healthy New Year!

Bone mineral density is reduced in people with MS

Source MSRA.org:
Evidence has been accumulating over recent years that people with MS are at increased risk of osteoporosis and bone fractures in comparison to the general population.
Osteoporosis is a progressive loss of bone minerals leading to fragile bones that are at greater risk of fracturing. It is common in the ageing population and particularly affects post-menopausal women due to hormonal changes that influence bone mineral density.  Read on.

The hidden lives of those who care

Source BBC:


While nobody sets out to be an unpaid carer, it is a job more than six million people currently perform, according to the 2011 Census. This hidden workforce, thought to save the economy £119bn a year, is drawn from all ages and backgrounds.  Read on.

Please support the Three Amigos!

Source Get Reading
Multiple sclerosis suffer Gregg Burgess-Salisbury, 43,  has run many races before, but is now in a wheelchair.  In next year's race he will be pushed along.  Read article here.
Donate here!  (The link in the article is broken!)

MS Society win award for ~Treat Me Right Campaign

Congratulations to the MS Society!

Treat Me Right campaign wins Public Affairs Award
Published date: 10 Dec 2014 at 10:50AM


The MS Society’s Treat Me Right campaign has won the inaugural Public Affairs Award for Voluntary Sector Campaign of the Year.

The Awards ceremony took place at the Park Plaza Riverbank in London on 9 December 2014.

The Treat Me Right campaign was up against Anthony Nolan’s Capes vs. Cancer, Cancer Research UK’s Voice for Radiotherapy, Leonard Cheshire Disability’s Make Care Fair and The Ramblers’ One Coast for All. Read on.

New Audio Guide - Just Diagnosed - an introduction to MS

Source MS Society:
https://soundcloud.com/ms-society-uk/sets/just-diagnosed-an-introduction-to-ms



Have your say about NHS Walk-in Centre in Broad Street Mall

healthwatch reading
Source NHS Berkshire Health Network:


Reading Walk-in Centre (RWC), located on the first floor of Broad Street Mall, Reading opened in August 2009. The service is provided by Assura Reading LLP in partnership with Virgin Healthcare. A five year contract was awarded with the option to extend for a further 2 years. The 5 year term of the contract expired in August 2014 but has been extended for a period of 2 years, with an end date of July 2016.  Read on.

Disability fund closure ruled lawful

Disabled man in office
Source BBC:

A government decision to close a fund that helps disabled people to live and work in the community has been ruled lawful by the High Court.


The Independent Living Fund (ILF) provides support for some 18,000 people and is worth £320m. The government plans to close it on 30 June 2015. Read on.

Royal Berkshire Hospital plan to move Caversham Ward to Woodley Ward

Source Get Reading:
Doctors and patients are distressed by a plan to move Royal Berkshire Hospital’s stroke unit from its purpose-built ground-floor ward.
The hospital trust says it will provide improvements for elderly patients with hip fractures.
The plan is to move the service from the Caversham ward, opened by the Queen in February 2006, to Woodley ward on an upper floor.  Read on.

Neurosupport runs the Employment and Community Service to help and advise people affected by a neurological condition

Worried about your job?Receiving a diagnosis of a neurological condition, or experiencing a brain injury can be a very distressing experience and worries about being able to keep your current job are common.
Our trained advice and guidance workers are experienced in helping people with neurological conditions to retain their existing job wherever possible. You can telephone or email us for initial advice at any time. Our advisors will usually then arrange an appointment to see you and discuss your issues in greater depth. They can liaise with employers, talk to managers, offer advice on adaptations to your workplace or working day, which may enable you to continue with your work and many other issues.  Read on.

Some training courses provided by Earley Crescent Resource Centre

Tuesday, 2 December 2014

Today is Giving Tuesday!






GivingTuesday (2nd December) is a global day of giving. After the sales of Black Friday and the online shopping boom on Cyber Monday, #GivingTuesday is an opportunity to come together to show the world why it’s good to give. Whether it’s making a donation, volunteering your time or just spreading the word at the start of the Christmas shopping season, #GivingTuesday is a call to action for everyone who wants to give something back


If you would like to make a donation to BMSTC please click here!  


Thank you to all of our supporters and volunteers who give so much time, support and money to keep us going. We couldn't do it without you! :0)

Fingolimod (Gilenya) not effective in primary progressive MS

Source MS Society:


"Note - While these results are disappointing, they do not affect the proven effectiveness of Gilenya in relapsing remitting MS."


Novartis - the pharmaceutical company that manufacture Gilenya - carried out a global phase 3 clinical trial involving 940 people with primary progressive MS, known as INFORMS. The trial aimed to evaluate the effect of Gilenya (in the form of a once daily tablet) on delaying the progression of disability compared to a dummy drug.


Novartis have announced that results from this trial indicate that Gilenya is not an effective treatment for primary progressive MS. The full results will be presented at an upcoming scientific conference. Read on.

MS Society responds to fitness for work announcements

Source MS Society:


A major independent review was published yesterday on the Work Capability Assessment – the test designed and used by the Department of Work and Pensions (DWP) to determine the entitlement of disabled welfare claimants to Employment and Support Allowance (ESA)Read on.

BMSTC display at Jacksons Corner in Reading Town Centre


Thanks to community project Reading Bike Kitchen for letting us promote BMSTC in your fantastic window at the old Jacksons department store!
Fingers crossed we recruit some riders for next years Prudential RideLondon-Surrey event!

Tecfidera now available from the NHS in England and Wales

Source MS Society:
Published date: 27 Nov 2014 at 1:01PM

From today Tecfidera, a treatment for relapsing remitting MS, will be made available on the NHS in England and Wales; it is already available in Northern Ireland and Scotland.   Read on.

MS Study Day

MS STUDY DAY 2014: AN OVERVIEW
Who was the event aimed at?
The study day was aimed at people newly diagnosed with MS, interested in therapies or currently on therapies.

When did it happen?
The event was held on Friday, 26th September 2014... at Twickenham Stadium.

I was unable to attend, can I still view the content?
If you were unable to attend, the event was recorded. You can view a selection of talks by clicking on the video links here.

MS Team saving time using iPads for remote consultations

Source MS Trust:


An MS team based at Morriston hospital, Swansea, is saving a significant amount of time by using iPads for remote consultations with patients rather than travelling to see them in clinics.


Following the success of a pilot iPad project involving seven patients, the south west Wales MS team plans to offer remote consultations to patients who are prescribed disease modifying drugs.  For more click here.

Tell us in a one minute video a change you want to see happen in 2015!!!

Source Disability Horizons:
All too often, disabled people are excluded because of physical, attitudinal and procedural barriers. Disability Horizons is tired of this unnecessary discrimination and is ready to act. With your help, we are going to tell the world about these daily injustices and demand change. We want disabled people to be heard by government, media, businesses and general society. Change must begin. It begins now, with you. - For more click here.

Thursday, 27 November 2014

Second hand Hoist available

On of our members has a hoist surplus to requirement:


Molift Smart - Second hand hoist from one of our members: We have a Molift Smart mobile hoist which we bought in 2009. It has a battery charging unit and two batteries both perfectly OK. The hoist has not been used for a couple of years and would need to be serviced. For more information email pippa@bmstc.org


For information about the model click here.

Wednesday, 26 November 2014

As Black Friday approches don't forget to use Give as You Live!

As Black Friday approaches for online Christmas Shopping, don't forget to register with Give as You Live. There are hundreds of companies such as Amazon, John Lewis, Sainsbury's who will give a donation to BMSTC when you shop with them online at no extra cost to you! Very simple to use! for more click here!

Christmas Fayre Success!

Thank you to our Members Link Group and all of the volunteers and supporters, particularly MP Alok Sharma who came along to the Christmas Fayre on Saturday. 


 The day was a great success and raised a massive £1,513.07p! Thank you to everyone involved for all of your hard work and support! :0)

OHSU is proceeding cautiously on new MS treatment using stem cells

Source Bizjournals:


Oregon Health & Science University isn't rushing to use a new a Multiple Sclerosis therapy that uses a person's own stem cells.
Dr. Richard Burt, chief of the division of immunotherapy at Northwestern University's Feinberg School of Medicine, on Friday spoke to a group of physicians at OHSU's Multiple Sclerosis Center about use of hematopoietic stem cell transplant (HSCT).  Read on.

Good luck Robert!

Source Get Reading
An IT engineer will be taking part in his first competitive run at the 2015 Vitality Reading Half Marathon next March to help a charity that has greatly helped his father.


Robert Bromley, 21, from Tilehurst (pictured with his Dad, Kerry), is supporting the Berkshire MS Therapy Centre at the event which starts at Green Park on March 22. Read on.

On Monday November 17th a Parliamentary Reception was held to share the latest results from the Risk-sharing Scheme (RSS) for MS drugs.

Sarah Joiner with George Freeman

Source MS Trust:


As the administrator for the RSS the MS Trust has worked for the last 12 years with the five parties to the Scheme namely the Department of Health, Biogen Idec, Bayer, Merck Serono and Teva to collect ongoing clinical data from 5,610 people with MS across the UK.  Read on.

Britain’s 20 most accessible tourist attractions

Source The Telegraph:


From London's Science Museum to the Titanic attraction in Belfast, here are 20 of the best attractions for disabled travellers.  Read on

MS Society campaign shortlisted for award

Source MS Society:


The MS Society’s Treat Me Right campaign has been shortlisted for The Public Affairs Awards voluntary sector campaign of the year.
Launched during MS Week in April 2014, Treat Me Right is calling for the right treatment at the right time for people with MS.  Read on.

Wednesday, 12 November 2014

Circuit Lane Surgery in Reading to be taken over by Trust

Source BBC:


A surgery where five doctors resigned will be taken over by a trust, while a long-term solution is looked for.


NHS England has announced that Berkshire Healthcare NHS Foundation Trust will run Circuit Lane Surgery in Southcote, Reading.


It follows the the resignation of the GPs in September, leaving 10,400 patients in the dark about its future.



Christmas Closure and extra Oxygen Therapy

BMSTC will be closed from 1pm on Wednesday 24th December until 9am on Monday 5th January. Our volunteer oxygen operators will be running oxygen therapy sessions during this time:

Tuesday 30th Dec - 3.30pm 24' and 5.45pm 33'

Saturday 3rd Jan - 10am 33' and 12 noon 33'

We recommend you book your place early if you would like to attend any of the extra sessions by calling 0118 901 6000.

We are very grateful to our volunteers for offering to give up their time over the Christmas period to help :0)

Do you know someone who deserves to have their life improved?


Photo

Next MS Specialist Nurse and MS Specialist OT Clinic at BMSTC

Next MS Specialist Nurse and MS Specialist OT Clinic at BMSTC is on the 12th December. Call 0118 901 6000 to make an appointment. (Please note they are only able to see people who are eligible to be seen by consultants in the Berkshire NHS Trust)

Tuesday, 11 November 2014

Inequality of access to MS specialist nurses across the UK is shown by MS Trust report.

Source: MS Trust


A report published today by the MS Trust finds that 30,000 people with MS live in areas where their specialist nurses are managing twice the sustainable level. This may mean that these people are not receiving all the support that they need. Read on

Help Needed at Christmas Fayre!

The BMSTC Link Group who organise the Christmas Fayre need some strong, willing and able bodied people to help setting up tables etc. 10am to midday, and then to help pack away from 3.30 to 4.30pm. on Saturday 22nd November at BMSTC.


If you can help (or nominate someone else to!) then please email Glynis: g.wilks@btinternet.com or call 118 901 6000. Thanks in advance! :0)

Monday, 10 November 2014

Photo: Andrea Dewing,  daughter of Andrea and Bob, completed the Great South Run for the Centre and raised a lot of money. 
Thank you Jenny :)
We have a great team of runners, but we are alway looking out for more, so if you know anyone who would like to run the London Marathon or the Reading Half Marathon, please ask them to contact Jackie at the Centre now!
Jenny Dewing, daughter of Andrea and Bob, completed the Great South Run for the Centre and raised a lot of money.
Thank you Jenny



We have a great team of runners, but we are alway looking out for more, so if you know anyone who would like to run the London Marathon or the Reading Half Marathon, please ask them to contact Jackie at the Centre now!  Email jackie@bmstc.org or call 0118 901 6000

Carers Rights Day - 28th November 2014

Carers Rights Day, 28th November 2014. Lots is changing for carers in terms of what they’re entitled to from social care, so the Council will be hosting an event to discuss this with Reading carers from 2pm in the Council Chamber at the Civic Centre.

Come along to receive your free copy of the updated ‘Looking After Someone’ carers rights guide from Carers UK, and to talk to us about plans for implementing the Care Act and the Children and Families Act from next year.

Light refreshments will be included.

Stop Press! - Newsletter correction

The Partners & Carers club meet on a Thursday, not Wednesday as stated in our newsletter.  Our apologies to the club!

Wednesday, 5 November 2014

BMSTC Christmas Fayre

Don't forget our Christmas Fayre here at BMSTC on Saturday 22nd November, 1.00pm to 3.30pm.  Officially opened by Reading West MP Alok Sharma.




- Father Christmas - Seasonal Gifts - Homemade Cakes - Refreshments - Tombola - Raffle and much more! - Admission only .50p!





Jackie Malcolm announces retirement next year!

Jackie has recently announced that she will be retiring on the 2nd April next year, we are all very sad that she will be leaving us although I'm sure she will still get roped into volunteering for us!



I'm sure you will want to join me in thanking Jackie for doing such a fantastic job fundraising for BMSTC for the last 8 years, and to send her our very best wishes for a happy retirement next year. She has been a joy and pleasure to work with and developed our Fundraising to a new level. 



Jackie wrote an article for our latest newsletter:



"It never ceases to amaze me what people will do to help the MS Therapy Centre and how heart-warming it is that they do so.  This is what I will miss most of all when I take retirement in April next year.


I will, by then, have been working for the MS Therapy Centre for eight years and it has been a very fulfilling and rewarding occupation. My previous background was in business, both large and small, with the main aim of making a profit. Fundraising for the Berkshire MS Therapy Centre made me focus on creating money for the common good and it has been enormously satisfying doing this and I will miss you all.



Of course, I do not live far away and I will come back on a regular basis to visit. No doubt, my successor, Samantha Harper, will be asking me to marshal events! Working at the MS Therapy Centre has been, without doubt, the most enjoyable and satisfying job I have ever done, I have learnt a lot and made many friends."


Samantha Harper has been working as a Fundraiser for MS-UK (formerly MS Resource Centre) for the past 4 years.  We look forward to welcoming her to the team in early January 2015.  Watch this space for more news.......

We're hiring!

BMSTC are looking for a qualified Physiotherapist (Band 6) for maternity cover from January 2015. This will be for a 12 month fixed term contract period. 


 Please see click here for  more information and feel free to spread the word.

Repurposing medicine could help MS sufferers

Various types of medicine in pill form
Source The Telegraph:


SIR – A number of repurposed medicines have shown strong preliminary evidence that they could be effective in the treatment of multiple sclerosis (MS), but Britain lacks a system by which old drugs can be relicensed for new purposes.   Read on.



The disability benefit Employment and Support Allowance (ESA) has featured heavily in the news

Source MS Society:


Published date: 30 Oct 2014 at 1:23PM


The disability benefit Employment and Support Allowance (ESA) has featured heavily in the news in the last 24 hours.
While the BBC has reported leaked documents about the future of payments, a major announcement on the new company replacing the assessment provider Atos has also been made.  Read on.

MS Society announces £1.45 million of new research

Scientist using a pipette
Source MS Society:


We are delighted to announce funding for 15 exciting new research projects, costing a total of £1.45 million.

 This brings our current number of active projects to 59, with research spanning cause, cure, symptom relief and MS services.  Read on.

Work starts on Cardiff University brain imaging centre

artists' impression of the Cardiff University Brain Research Imaging Centre (CUBRIC)

Source BBC:
Work to build a £44m brain imaging centre to help experts better understand the causes of conditions like dementia and multiple sclerosis has begun in Cardiff.


Researchers at the Cardiff University site will use mapping techniques to get a more detailed look at how the brain works.  Read on.

Friday, 24 October 2014

Donate a Tenner today to BMSTC and get it matched!

You may remember that I contacted before about Localgiving.com.  This is the website created by the secret millionaire Marcelle Speller, who wants to support locally based community charities  around the country like the Berkshire MS Therapy Centre.



They will be matching all £10 donations on the www.localgiving.com website until the £500,000 they have procured is spent. This campaign will be going nationwide.



If you would like to pledge £10 to the Berkshire MS Therapy Centre, please click the hyperlink and make your donation www.localgiving.com/bmstc . Your £10 will be doubled and gift aid added if you are a UK taxpayer.   



Of course, if you don't use the Centre and your connection is very limited, I am sorry to have bothered you and please delete this email. If you have any queries, please call me on 01189016000 or email Jackie@bmstc.org.

Fancy a challenge or challenging someone else in 2015

Photo: We have Gold Bond places in both the London Marathon and the Reading Half Marathon in 2015. These places are given to people who want to raise sponsorship for the Centre, and if you know anyone who would like to support us, please get in touch with Jackie at the Centre now !

We have Gold Bond places in both the London Marathon and the Reading Half Marathon in 2015, we also have places for the prestigious cycling event, Prudential Ride London.


These places are given to people who want to raise sponsorship for the Centre, and if you know anyone who would like to support us, please get in touch with Jackie at the Centre now on 0118 901 6000 or email jackie@bmstc.org





Thousands with degenerative conditions classified as "fit to work in future"

Source Independent:


More than a third of people with degenerative conditions such as Parkinson’s and multiple sclerosis are having their benefits slashed because the Department for Work and Pensions deems they will recover enough to look for work.  Read on.

What MS research are scientists doing right now?

Photo: What MS research are scientists doing right now? What goes on at the MS Society Tissue Bank? We report from a 'Meet the Neuroscientist' event at Imperial College London - read it here: http://bit.ly/1uE8EjP
Source MS Society:


What MS research are scientists doing right now? What goes on at the MS Society Tissue Bank? We report from a 'Meet the Neuroscientist' event at Imperial College London - read it here!

Tuesday, 21 October 2014

Thames Valley Police continues to raise awareness about disability hate crime

Thames Valley Police continues to raise awareness about disability hate crime and encouraging friends, family, and support workers to report any incidents where they believe someone they know, is being targeted because of their disability. http://www.thamesvalley.police.uk/aboutus/aboutus-ead/aboutus-ead-hate-crime/aboutus-ead-disability-hate-crime.htm

More Christmas pressie ideas!


Ross Hatt, (another one of our talented members!) makes beautiful silver jewellery and gives a donation to BMSTC for items she sells. http://www.agapanthus-silver.com/
She has also recently published a book of short stories with some other local authors. Profits from this book go to Breakthrough Breast Cancer. http://www.offcoursewriters.co.uk/

UK MS Society Tissue Bank funding renewed

The MS Society have committed a further £1.26 million to the MS Society Tissue Bank at Imperial College London, so that they can continue their important work for another five years.  Read more here!

Monday, 20 October 2014

Stuck for Christmas pressie ideas?

The M.S Zip Angel
Then how about some beautiful hand crafted Jewellery?  Every purchase made raises money for BMSTC with thanks to Judy!


Visit the website here

Friday, 17 October 2014

Order your Christmas Cake before the 31st October!


One of our members Jean Butlin makes Christmas cakes to be sold at the Christmas Fair. If you would like one made can you please put your order in by 31 October. Please put your name and contact details on an envelope with the money enclosed and give in at the Reception desk.

£6.00 for a small cake 4 inches
£8.00 for a medium cake 6 inches

 Large ones by special request only. Please also state any other special requests i.e. no marzipan etc

Wednesday, 15 October 2014

Shop online and raise money for BMSTC at the same time with Give as you Live!




Shop online with Give as you Live and raise money for BMSTC at the same time! 


Amazon will donate 1.5%  and John Lewis 2% plus many other well known retailers.  They have even created an App for your Apple or Android device to make shopping on the move even easier!  Find out more before you order all of your online Christmas shopping by visiting Give as you Live site here!

Transport for London


Message to one of our members from Transport for London:

I am writing to let you know that we have secured an additional £75m fund to make travel across our network more accessible. This will enable us to install new lifts, making more Tube stations step-free than originally planned over the next 10 years.

The 30 Crossrail stations in London will also all be step-free, as will 28 more Underground and Overground stations, which already had funding.

To help you plan your journey, we’ve added travel tools to our website and accessible options to journey planner. You can also download maps and guides, or order them and have them delivered free of charge.

For information about accessible travel, please visit tfl.gov.uk/accessibility

If you or others would like to sign up with a different email address in order to receive our accessibility email updates, please visit tfl.gov.uk/emailupdates

Accessible transport is just one of the ways we reinvest all our income to run and improve your services.
Yours sincerely,
Signature_________________Image not displayed
Vernon Everitt
Managing Director,
Customer Experience, Marketing and Communications
These are our accessibility email updates. To unsubscribe, please click here or for others to sign up, please click here

Tuesday, 14 October 2014

BMSTC Christmas Fayre!

Saturday 22nd November 2014, 1pm to 3.30pm, Officially opened by Alok Sharma MP at the Berkshire MS Therapy Centre, 23a August End, Brock Gardens, Reading, RG30 2JP

- Father Christmas - Seasonal Gifts - Homemade Cakes - Refreshments - Tombola - Raffle and much more! - Admission only .50p!

Come along and join the fun!

Want to earn up to £60 plus a £30 donation to BMSTC?

Please note that enough people have been enrolled for this research project.


Best wishes


Pippa

Guardian's health editor discusses NICE guidelines on drugs and clinical care

Source Guardian:


With Nice announcing its latest guidelines on drugs and clinical care, the Guardian's health editor is joined by an expert panel to discuss the implications for those who suffer from MS.

Sarah is joined in studio by Professor Mark Baker, d...irector of the centre for clinical practice at Nice, Dr Paul Cooper, chair of the MS guidelines committee, Dr Nick Rijke, executive director of policy and research at the MS Society, and Amy Bowen, director of service development at the MS Trust.  Listen here!

NICE puts exercise at heart of MS Guidance

Source CSP:


People with MS should be encouraged to exercise, according to updated guidance from the National Institute for Health and Care Excellence (NICE).


It says patients should be advised that aerobic, balance and stretching exercises may be helpful in treating MS-related fatigue.


NICE calls for people with the condition to receive supervised exercise programmes involving moderate progressive resistance training and aerobic exercise.  Read on.

MS Society responds to new NICE clinical guidelines on MS

Two MS treatments that relieve MS symptoms have been rejected by the National Institute of Health and Care Excellence (NICE), in its new national clinical guideline for multiple sclerosis, published on the 8th October 2014.


The guideline, which sets out how the NHS should manage the treatment of people with MS, is the first to be published in over a decade.  Read more.



Get your charity Christmas Cards at BMSTC or order online and personalise them online!

We have a variety of Christmas Cards available to either buy at the Centre or why not personalise your own by clicking on the link below, don't forget to select the  Berkshire MS Therapy Centre as your charity!:


http://www.charitychristmascards.com/

London Marathon, Reading Half Marathon and Prudential Ride London places available for 2015!

Photo: We have Gold Bond places in both the London Marathon and the Reading Half Marathon in 2015. These places are given to people who want to raise sponsorship for the Centre, and if you know anyone who would like to support us, please get in touch with Jackie at the Centre now !
Fancy a challenge or know someone else who would?


We have Gold Bond places in both the London Marathon and the Reading Half Marathon and places in the prestigious Prudential Ride London Cycle in 2015. These places are given to people who want to raise sponsorship for the Centre, and if you know anyone who would like to support us, please get in touch with Jackie at the Centre now on 0118 901 6000 or email jackie@bmstc.org



People with MS are encouraged to get seasonal flu jab

Source MS Trust:


The seasonal flu vaccination is now available to people who fall into at-risk groups, which includes anyone with a neurological condition such as multiple sclerosis, those over 65, and the main carers of a disabled person.  Read more....

Amantadine (Symmetrel, Lysovir) may be out of stock due to manufacturing delays

Source MS Trust:


Anyone currently taking amantadine, sometimes prescribed for fatigue in MS, may want to check with their pharmacist to ensure there will be stocks ready for their next prescription.   Read on.

Monday, 29 September 2014

Reading Bridge works

Source BBC News:

A heads up from November that work is planned for Reading Bridge...read on






Bear the chocolate Labrador helps out at one of our collections! :

Source Henley Standard:

BEAR the chocolate Labrador made all the difference to a charity collector’s takings.

Liz Cheyney was collecting outside Boots in Bell Street, Henley, for the Berkshire MS Therapy Centre in Reading when she was joined by the dog and his female owner.

Liz, 71, from Caversham, said she usually took only a few pounds but with Bear’s presence, she made £50.

“It was amazing — people came in droves,” she says. “I took more money that day than ever before.”

She would like to find out who the woman was so she can thank her and her dog.


I think he must be the very same Bear who entered this years Henley’s Top Dog competition, so I will put Liz in touch.

Published 08/09/14

MS Specialist OT Clinic at BMSTC

New MS Specialist Occupational Therapy clinic available at the same as the MS Nurse Clinic at BMSTC. Next dates are Monday 13th October and Friday 12th December. Please book by calling 0118 901 6000. (Please note it is not possible for the MS Nurse to see BMSTC members who are not eligible to be seen by consultants within the Royal Berkshire NHS Trust)

Thank you to all who support Walking for MileS 2014

Thank you to everyone who came along and supported this year's Walking for MileS event in Henley. 

We had fantastic weather, and a fantastic turnout of walkers, wheelers and volunteers.  We were delighted that the Mayor of Henley, Martin Akehurst, kindly accompanied Catherine Ruggerio on the Marsh lock walk.  We will announce the total raised in due course.

Monday, 15 September 2014

It's the Final Countdown....to Walking for MileS - Sunday 21st September at Henley on Thames

Last online entry can be accepted up to midday this Thursday 17th September. After this time, please register on the day at the River and Rowing Museum in Henley - we'll be in the educational block, please follow the signs. Look forward to seeing you there! :0)  Enter online here!

BMSTC Link Group Reques for Christmas Fayre

Request from the BMSTC Link Group who are organising the Christmas Fayre on Saturday 22nd November 1.00 to 3.30pm, officially opened by Alok Sharma MP.

If you have items such as new, nearly new, wine, CD's or DVD's, cakes etc please brin...g them to the Centre week commencing 17th November. (Please note we are unable to accept bric-a-brac, books, VHS videos or audio cassettes - sorry!)

They are also on the hunt for a volunteer Man-with-a- Van to help bring items and take them away after the sale. Any enquiries please contact organiser Glynis,  g.wilks@btinternet.com
  

Thank you in advance for your help :0)

Ann Scarboro nominated for MS Society Awards - Carer of the Year!

Listen to Ann Scarboro on the Phil Kennedy show - interview starts at 36 mins 43 seconds into the programme. Ann has been nominated by her husband David for the MS Society Awards - Carer of the Year! Best of luck Ann from everyone at BMSTC! :0)  Follow link here! - available until the 17th September.

The MS Society need your help!

In April, NICE rejected two of the only symptom management treatments specifically licensed for MS.

We know that access to these treatments is a priority for many people with MS and we have anecdotal evidence that with these treatments unavailable, some people are turning to alternative or unlicensed options. 

 We need to hear from you to make sure we understand the full picture! Take our survey Click here

Thank you 79th Scout Troop Reading for your Ice Bucket Challenge in adi of BMSTC!

79th Scout troop Reading held an ice bucket challenge on the night Kirsten’s son moved up to Explorer Scouts . They decided to do it to raise funds for our Centre. They all loved getting soaked and raised £39.32.

Thanks to James and the other leaders and of course to all the Scouts .

BMSTC Refurbishment update

We have been very busy preparing specifications for the rest of the refurbishment project.  We will soon be in a position to get competitive quotes and select our contractor.  Watch this space for more news!


You might be interested to know some of the companies we have identified to help us with our toilet/shower area and the kitchen and refreshment area. 


Our interior designer is Lesley Ann Gentry, who did the original design for us when we moved into Bradbury House.


Motion Spot specialise in accessible bathrooms, wet rooms and toilets with a keen interest in modern design.


Design Matters specialise in accessible kitchens - Adam Thomas is acknowledged as a world leader in accessible kitchen design, with an established reputation for innovative solutions that set the standard in his field.

Tuesday, 9 September 2014

BMSTC selected as one of the names charities for the Reading Half Marathon 2014!

Source Reading Chronicle
MACs, The Fire Fighters Charity, The Royal Berks Charity, Berkshire MS Therapy Centre, Babies in Buscot and Naomi House they will be supported alongside official event charity, Scope.
The Reading Half Marathon has been the largest fundraising half marathon in the South of England and it is hoped the 2015 event on Sunday, March 22, will be a record breaker.  Read on

Counting down to this years Walking for MileS, 21st September.

Photo: It's time to get your walking boots on again and persuade your friends to join in Walking for MileS in Henley on Sunday September 21st., Remember, this is an event that everyone can take part in and as we are celebrating our 30th Anniversary, lets make it the best :)

It's time to get your walking boots on again and persuade your friends to join in Walking for MileS in Henley on Sunday September 21st., Remember, this is an event that everyone can take part in and as we are celebrating our 30th Anniversary, lets make it the best!

MS Zip Angels!

Zip Angel  -  Zip Pull

One of our supporters is making some beautiful glass Jewellery to sell, she will be making a donation to BMSTC from the proceeds. For every one of these beautiful glass MS Zip Angels sold she will be donating £1.00 to BMSTC! Please share this with your friends and family, they would make great Christmas pressies and BMSTC benefits too! Happy days, Thank you Judy! :0)  Visit Judy's website here.

Multiple sclerosis could be 'switched off' by retraining immune system

Source The Telegraph:
Scientists believe they are close to developing a drug which could 'switch off' autoimmune diseases like Multiple sclerosis by training the body to stop attacking itself.  Read on.

Tilehurst Titans

We are runnng a 5 mile mud and obstacle race for Berkshire MS Therapy Centre because we want to raise money and awareness.  If you would like to sponsor us please visit our Just Giving Page here!

Antithesis, synthesis? A curious observation may lead to a treatment for multiple sclerosis

Source: Economist
IN SCIENCE, as in many other walks of life, what is unexpected is often what is most interesting and important. The idea, first mooted in 2011 by Julian Gold of the Prince of Wales Hospital in Sydney, Australia, that HIV infection—or maybe the drug treatment used to fight it—might protect against multiple sclerosis (MS), was certainly unexpected. Now, in a study just published in the Journal of Neurology, Neurosurgery and Psychiatry, Dr Gold has confirmed his suspicion. That is interesting. It may also be important.  Read on.