Thursday, 30 May 2013

Please can you help - "What does BMSTC mean to you?"

We write many applications for funding to various organisations throughout the year.  We need to get a strong message accross to encourage them to donate to help keep the funds coming in.

We have found it useful to include quotes from our service users, whether that be people attending the Centre for various treatments, or simply using us as an information and support resource.  Our volunteers also give us wonderful feedback on what they get out of volunteering at the Centre. 

We are refreshing our application letters and would like to encourage people to send us a short quote saying how they benefit from the services we provide, or from volunteering at BMSTC.  We ofen hear wonderful comments from people, it would be fantastic to capture those words to spread the news of our work. 

Your words are far more important than ours! We only use the quote in our applications and not the name of the person who has written it.

You can email these to me pippa@bmstc.org, comment on our Facebook page http://www.facebook.com/BMSTC, tweet @BerksMSTherapy  or if you would prefer to remain anonymous simply leave your quote in an envelope at reception or pop it in the post to me!

Many thanks in advance for your help!

Pip :0)x


MS Unit to trial new treatments

Source BBC:
Scotland is to benefit from a dedicated centre to test potential new treatments for multiple sclerosis.

The MS trials unit at the Southern General in Glasgow will conduct clinical trials of drugs which could delay the progression of the condition.  Read more here.

Only two weeks to Boars Bridge Festival!


Only 2 weeks to go until Boars Bridge Festival 2013! If you haven't got your tickets, now is the time to get 'em!

For more information click here!

Wednesday, 29 May 2013

MS Society appoint new Chief Executive

Headshot of Michelle Mitchell
Source MS Society:

The MS Society is delighted to announce the appointment of Michelle Mitchell as its new Chief Executive from September.
Michelle is a highly experienced leader and is currently Charity Director General at Age UK.

Read more here!

Pilates at BMSTC! - come and join in!

Join our Tuesday morning classes at 9am with Kathi Elliott!

Pilates has the potential to help those with multiple sclerosis in many common problem areas: balance, body awareness, stress, spasticity, and strength to name just a few. As a refreshing mind/body workout, it’s a great alternative--or accompaniment--to tai chi and yoga. Physical therapists often recommend Pilates to help rehabilitate injuries since it incorporates low-impact movements in a gentle, graceful manner: “By emphasizing proper breathing, correct spinal and pelvic alignment, and complete concentration on smooth, flowing movement, you become acutely aware of how your body feels, where it is in space, and how to control its movement.”

What makes it so popular in the MS community? Pilates focuses on core muscles--muscles in the centre of the body like deep abdominals and muscles around the spine--that are important for overall stability and balance, common problem areas in multiple sclerosis. Pilates also builds strength (without bulk), teaches body awareness (great for those MSers with numbness), promotes good posture, and improves muscle elasticity and joint mobility (stiffness anyone?).

One of the more overlooked benefits of Pilates is that it emphasizes proper breathing and smooth, flowing movements--both natural stress relievers. As you are probably aware, combining stress and multiple sclerosis is to be avoided as much as possible.

Like yoga, there is a good deal of mat work in Pilates; you are often in a reclined or seated position (handy if you are unsteady on your feet). Aside from a few exercises, it tends to not be aerobic--reducing the risk of overheating and fatigue. Using low-impact, partial weight-bearing techniques, with an emphasis on economy of motion, it’s a safe workout for MSers of any age.

Kathi has worked in the fitness industry for the past 20 years, and delivers Level 3 Pilates Matwork Instructor courses. She also teaches group fitness and Pilates classes, as well as one-to-one Pilates clients, many of whom go to Kathi as a result of osteopathic referral.

For the past 13 years Kathi has been training new exercise instructors, and also working as an assessor and verifier for the industry's awarding bodies.

 

BMSTC AGM Guest Speaker Surg Cdr Matt Craner Video

For those who were unable to attend our AGM, (and for those who would like to see it again!) we filmed our guest speaker Surg Cdr Matt Craner who gave a very interesting presentation on "Neuroprotective Strategies in MS".

To watch the video click here!

For more information about Dr Matt Craner click here!

Thanks to Dave Robson, BMSTC Trustee, for all of his work to produce this video :0)

Mower Mum Megan Healey's long distance charity ride for MS

Source www.perthnow.co.au
Megan Healey, surrounded by her support crew, drove from Melbourne to Sydney on her ride-on lawn mower to raise money for MS. She is a sufferer and her kids care for her.  For more click here!




Book launch on World MS Day, 29th May 2013


Source PRWeb.com

Just One Kiss by Susan Mallery, a romance novel released just in time for World MS Day – May 29 – features a mom who has multiple sclerosis. Mallery wanted to honor people with the disease by creating a character whose MS is something she lives with, not something that defines her as a person.  Read more here.

BMSTC Fundraiser Erica is nominated for Pride of Reading Awards

Erica Key has been nominated for Health Worker of the Year in the Pride of Reading awards
Source Reading Post:

"A senior occupational therapist (OT) who has fundraised for Berkshire MS Therapy Centre for 17 years has been nominated for a Pride of Reading award."

Thank you Erica for your many years of support to BMSTC and long may they continue :0)

Read more here!

Congratulations to BMSTC Link Group for Summer Fayre Success!

Photo: Thank you to our wonderful BMSTC Link Group for organising such a great Summer Fayre!  Thank you to everyone who came along to support the day, in particular our patron, Sir John Madejski who officially opened the event.  Watch this space for the total amount raised.........
Thank you to our wonderful BMSTC Link Group for organising such a great Summer Fayre! Thank you to everyone who came along to support the day, in particular our patron, Sir John Madejski who officially opened the event. 

The event raised a magnificent £1,317.54p!

Thursday, 23 May 2013

Farewell to Ruth Lownsbrough, BMSTC Physio Manager!

A message to you from Ruth:

" Nineteen years is a long time to be associated with any organisation! Well the time has come for me to hang up my exercise sheets and move on to something new. Some of you will know that I have been a Local Preacher for a few years. Well, beginning in September this year, I am going to train to be a full-time Minister in the Methodist Church. Quite a change, but it is something I feel called to do.

As you might appreciate it has been a big decision to leave the MS Therapy Centre. I have had a great time working here with such an amazing group of people, staff and members. Such change is always a challenge but I know that the Physiotherapy team is well up to it and will continue to serve the members who attend with their fantastic combination of skill, empathy and humour.

I shall miss being at the Centre on a regular basis but hope to pop in from time to time.

Best wishes

Ruth"
 
I'm sure you will all join me in saying an enormous "thank you" to Ruth for everything she has done to help so many people at BMSTC over many years.  She will be greatly missed by everyone here at the Centre, but we wish her the very best of luck on her new path to become a Minister in the Methodist Church.    
 
 

Summer Fayre with Sir John Madejski this Saturday 25th May

Don't forget the BMSTC Link Group Summer Fayre this Saturday 25th May. 

Plants, crafts, preserves, homemade cakes, refreshments and much more! 1.00pm to 3.30pm at BMSTC! To be officially opened by BMSTC Patron Sir John Madejski at 12.45!

Admission only .50p!

NHS physiotherapy provision is not meeting the needs of people with MS

 
Source MS Trust:

(Thank goodness for all of the MS Therapy Centres throughout the UK for providing an excellent service provision. Pip:0)

A recently published study carried out an in-depth analysis of the views of people with MS on physiotherapy services. The researchers evaluated comments made on physiotherapy provision from the 2008 MS Trust/Royal College of Physicians audit of MS services in England and Wales.  For more on this story click here.

Endure 24 - Glow in the dark loo roll!!

Glow in the Dark Toilet Roll
Source Endure 24

Our runners in this year's Endure 24 Event may find it difficult to hide in the bushes at night!!  For more on this story click here.

For information about this event, click here!

Researchers develop effective fatigue management programme.

Source MS Society:

Researchers funded by the MS Society and based at Bournemouth University and Poole Hospital NHS Foundation Trust have developed a highly effective method to help people with MS manage their fatigue.  For mor click here.

The Care Bill was published earlier this month, and it could significantly improve care and support in England for people with MS.

Photo: The Care Bill was published earlier this month, and it could significantly improve care and support in England for people with MS. 

Emma from the Policy team explores the possible impact of the Care Bill, and how it could be improved: http://bit.ly/14smlrv
Source MS Society:

The Care Bill was published earlier this month, and it could significantly improve care and support in England for people with MS.

Emma from the Policy team explores the possible impact of the Care Bill, and how it could be improved: http://bit.ly/14smlrv

Early treatment with interferon-beta may preserve cognition


Source MS Research Australia:
 
Declines in cognitive function are a relatively common feature in MS and have a significant impact on the social, emotional and family life of people with MS. Cognitive changes have also been shown to be one of the most significant factors affecting employment for many people with MS.
 
For more click here!
 
 

AGM Thank you!

Thank you to everyone who came along to our AGM last week. Our guest speaker, Surg Cmdr Matt Craner, was fantastic! We hope we will be able to share a video of his presentation very soon. Watch this space.......

Sequela Foundation - supporting neurological well-being in East Berkshire

Source: Sequela Foundation:                                                                            Supporting Neurological Wellbeing in East Berkshire!
 We offer a free support network to anybody who has any kind of neurological condition in the East Berskhire area.  For more click here!

Tuesday, 14 May 2013

Multiple sclerosis sufferer tells how oxygen therapy has given her a new lease of life

Source Daily Record:
WHEN Elaine Green was first diagnosed with multiple sclerosis, she feared facing the rest of her life suffering its debilitating effects.
Elaine, 60, from Paisley, had first visited the doctor more than 20 years ago when the vision in her right eye became hazy, but it would be several years before her condition was identified.  Read more here!

NHS care: Overhaul of elderly and disabled care

Source BBC:
An overhaul of the way care for elderly and disabled people is provided in England is to be launched.

The Department of Health says that all areas of the country will have to integrate NHS and adult social care services within five years, to ensure that all patients get the help they need.

Michael Buchanan reports.  Watch here!

Lamb issues plan to integrate health and social care for all by 2018

Community Care logoSource Community Care:

Care services minister Norman Lamb vows to remove barriers to co-ordinated care to improve outcomes for people with long-term conditions and value for money.  Read more here.

Article on the future of Brambles

Source Get Surrey:

A RESPITE care centre in Horley has closed down after more than 20 years, because of a dwindling number of service users.

Brambles MS Care Centre, in Suffolk Close, shut its doors on Saturday (May 4).  Read more here!

Last day to nominate BMSTC to be the Sainsbury Local Charity Partner!

Please nominate BMSTC to be the Sainsbury's Local Charity Partner. Closing date for nominations 14th May 2013!

For more click here!

Help us save MS specialist nurses

Source MS Society:
MS specialist nursing posts in England are at risk. To date, the MS Society has saved 16 MS specialist nursing posts from being axed, but with your help we can ensure we protect many more.  For more click here.

Legal review into decision to tighten PIP mobility qualifier

A campaigner has succeeded in his fight for the High Court to conduct a judicial review of the decision made by the Department of Work and Pensions’ (DWP) to introduce stricter criteria for people applying for the mobility component of PIP.

For more click here

Carlos and Marvin cycled 44 miles around Virginia Water for BMSTC!

We are very lucky at the Centre to have so many supporters who help to raise funds for us.

Carlos Brown and his friend Marvin cycled 44 miles around Virginia Water and have raised an amazing
£841.50 for us. Thank you very much to you both 

Wednesday, 8 May 2013

This Thursday - BMSTC AGM 16th May 2.30 - 4.00pm

Come along to our AGM here at the Centre on the 16th May, 2.30 - 4.00pm!

Find out what's been going on through 2012 and vote in your board of Trustees for 2013/2014.

We are delighted to welcome our guest speaker, Surg Cdr Matt Craner who will be talking about "Neuroprotective strategies in MS".  Find out more about Matt Craner here!

Brambles Closure

Source Redhill Reigate Horley Life:


Horley's acclaimed Brambles Respite Care Centre for people with Multiple Sclerosis (MS) has announced it is to close this Saturday (May 4).  Read more here.

Endure 24 - Life begins at the end of your comfort zone!

Photo: "Endure 24 - Life begins at the end of your comfort zone" http://www.bmstc.org/Events/Endure-24.aspx
Endure 24 is a twenty four hour race run over a 5 mile loop of woodland trails. 8th & 9th June 2013, Wasing Park near Reading.
The event takes place in the scenic Wasing Park Estate, Aldermaston near Reading. Free camping, showers, 24 hour catering, entertainment and beautiful surroundings give it an exciting festival feel. Runners and Marshalls needed! For more click here!

Healthwatch West Berkshire

Source: Healthwatch West Berkshire:

Good or bad, we want to know what you think of the care you receive in West Berkshire

For more click here!

BMSTC Patron Sir John Madejski to open Summer Fayre!

Photo: BMSTC Patron Sir John #Madejski to open BMSTC Summer Fayre on 25th May! http://www.bmstc.org/Events/BMSTC-Summer-Fayre-and-Plant-Sale---25th-May-2013.aspx
We are delighted that Patron Sir John Madejski will officially open our Summer Fayre here at BMSTC on the 25th May!

Plants, crafts, preserves, homemade cakes, refreshments and much more! 1.00pm to 3.30pm at BMSTC!

Admission only 50p!

Wednesday, 1 May 2013

Hampshire's biggest little charity event in aid of BMSTC

Boars Bridge Charity Acoustic Music Festival in aid of BMSTC.

2013 will see the fifth Boars Bridge Fest which over the years has raised over £10,000 for the Centre!  As usual we have a wonderful line up of local singers and renowned professionals.

14th - 16th June 2013 Near Bramley, Hampshire.  Entry by ticket in advance only.  For more see the festival website here!

Request from BMSTC Link Group for Summer Fayre


Dear BMSTC Member

SUMMER FAYRE
25 MAY 2013,  1 - 3.30pm
 
Once again we are planning the Summer Fayre and  we are fortunate to have  Sir John Madejski to perform the opening ceremony. As usual we are asking for your help.  Please will you donate any of the following?

Prizes for the raffle and tombola.  Any new, unused, items would be very welcome. Please place in plastic bin by the reception desk at the Centre.

Lots of Soft Toys needed for this tombola and other tombolas we are planning.

Wine for prizes in the Wine Raffle
Please give wine to Trish Wright or hand it to Tracy or Jackie who will pass it on to her.

Cakes to serve with tea and coffee on the day and for people to buy and take home.
Cakes should be brought along on the day, or a day or two before.

 If you have none of the above, a £1 donation would be appreciated. Please give this to Tracy or Jackie and ask them to pass it on to a member of the Link Group.

Other ways you can help

Are you or any of your family and friends available to help on the day?  We need able-bodied people to help set up the tables from 9 am to 11 am.  Also help is needed at the end of the day (dismantling tables and clearing up) from about 3pm to 5pm. If you or anyone you know could help with this (or in any other way) there is a volunteers' form at the Centre for you to complete or please phone the Centre.

Also we would welcome anyone who has things to sell who would be willing to do a table for us on the day.  Two of our regulars are not able to do their usual stalls this year.

 Please come along on the day with your friends and family.  You will find   lots of stalls with all sorts of things to buy including lots of plants and delicious cakes to eat in or take away. Tea, coffee and cold drinks will also be available.

Many thanks for your support and we look forward to seeing as many of you as possible at the Fayre.

Sue Smith
BMSTC Members' Link Group

Naidex - The UK's largest disability, homecare and rehabilitation event

NAIDEX 2013 gives you the opportunity to keep up to date with the most exciting developments in the disability, rehabilitation and homecare industry.

You will get insights, tips and advice in areas that range from the latest technological innovations in Tomorrow's World to getting personal advice on equipment and home adaptations with an occupational therapist in Meet the Expert.  For more click here.

MS patients missing out on drugs

Source BBC:
Only 40% of people eligible for drugs to combat multiple sclerosis in the UK are actually taking them, says a report from the MS Society.  For more click here!