Thursday, 20 September 2012

Personalised Christmas Cards!

I know it may seem a little early but Christmas will be upon us again in no time!! You can buy peronsalised Christmas cards and raise money for BMSTC at the same time by following the link below. Up to 50p for every card could be donated to the Centre :0)

For more details click here!



Dysaesthesia and MS

Photo: Dysaesthesia, or paraesthesia, is the medical term for uncomfortable, abnormal sensations, such as pins and needles, burning or crawling feelings, numbness or tightness for which there is no external cause. Although these are often experienced as affecting the skin, the sensation is caused by interrupted nerve messages in the central nervous system. 

Read more on 
www.mstrust.org.uk/atoz/dysaesthesia.jsp
Source MS Trust:

Dysaesthesia, or paraesthesia, is the medical term for uncomfortable, abnormal sensations, such as pins and needles, burning or crawling feelings, numbness or tightness for which there is no external cause.

Read more here.

"Grow Your Tenner" Campaign

Many of you will remember the Localgiving website that was created by the secret millionaire, Marcelle Speller last year.

On Tuesday September 25th they will be launching the 'Grow Your Tenner' Campaign, which means if you log onto www.localgiving.com/bmstc after 10am in the morning of the 25th and pledge £10 to the Centre, they will make it £20, which is fantastic.:)

Weatherman Fishes for more legacies

Source MS Trust:

Weatherman Michael Fish will mark the 25th anniversary of the 1987 storms by encouraging more people to plan for the unexpected and make sure they have a Will.  Read more here.  

(If you are considering leaving a legacy to BMSTC and would like further information, please contact pippa@bmstc.org ).


Scottish Medicines Consortium approve new MS pill for NHS

Source MS Society:

Gilenya, the new MS pill, has today been approved by the Scottish Medicines Consortium (SMC) for the treatment of adults with highly-active relapsing remitting MS.  Read more here!

Monday, 10 September 2012

Disability Products Survey

Hannah Dunk
From one of our Members Hannah Dunk:
Hi, I wondered if you could help me out by sending on this survey to all your followers? It's very short and simple for people to fill out. I have come up with a range of products to help disabled people and would like to know more from the people who may use them. Hope the walking for miles went well! Many thanks, Hannah http://www.surveymonkey.com/s/95ZGMJ2
 

Insoles improving your balance – do you want to try a pair?


Insoles improving your balance – do you want to try a pair?
The Danish company Medicovi has designed a water filled balance increasing insole beneficial for people with MS. We have been given the opportunity to try the insoles D40 and are looking for 10 members interested in trying these insoles for free.
In a recent Danish survey with PWMS a large group of participants achieved a much improved balance and mobility, while a small group achieved a somewhat better balance. Some reported increased comfort, pain relief and warmer feet. A small group experienced no improvements in terms of balance.
The insoles are designed to impact the sensation in the feet and for this reason the necessary communication between the body and the CNS will happen faster achieving a better balance. The insoles are also believed to have a preventive measure with regards to future loss of balance.  For more information please see http://ms.medicovi.com/en/ and look under documentation to learn more about the Danish survey.

If you want to participate or want further information please contact Henriette (01189016000 or Henrietta@bmstc.org)
You will be required to attend the MS Therapy Centre for an initial appointment to try the insoles and as well another six weeks follow up appointment.  You will be filling in the MSWS-12 walking scale and also have your balance assessed by a physiotherapist on both occasions. The benefits are likely to increase the more you use the insoles.

What would you most like to ask MPs?

Photo: What would you most like to ask MPs?

It's nearly Party Conference season, and the MS Society will be interviewing MPs at the Lib Dem, Labour and Conservative conferences.

We'd like to know what you'd most like find out from them. Submit questions here, or email campaigns@mssociety.org.uk.
Source MS Society:

It's nearly Party Conference season, and the MS Society will be interviewing MPs at the Lib Dem, Labour and Conservative conferences.

We'd like to know what you'd most like find out from them. Submit questions here, or email campaigns@mssociety.org.uk.

"Being diagnosed with MS: What did it mean to you?" Research Study.

A Study of Responses to Diagnosis and Living with MS.  To take part click here!

How much control to we really have over our bodies and health?

Source BBC World Service:

Modern technology and medicine can treat conditions that were once thought to be incurable. In other ways though, are we any less vulnerable than in the past to disease and injury, both as individuals and societies?
Bridget Kendall's guests this week bring personal as well as professional experience to the table: the award winning author MJ Hyland explains why she has gone public about her life with multiple sclerosis. Mark Harrison is a medical historian who has tracked the links between disease and commerce, and entrepreneur Frank Reynolds has devoted the last 20 years to developing treatments for his own spinal cord injury.   To watch click here

Illustration by Emily Kasriel: the challenge of trying to control our own bodies.

Coming Out - MS patients in their 30's talk about the challenges of coming out with MS

Source BBC Radio 4:

Multiple Sclerosis is most often diagnosed in people aged between 20 and 40, a time when careers and relationships are of primary importance. Two MS patients in their 30s talk about the challenges of coming out with the disease, and how far to be totally open about it. To listen on BBC iPlayer  click here!

Frances Longman is cycling the Coast to Coast for BMSTC!


Our volunteer Massage Therapist, Frances Longman, will set off this Thursday to cycle 132 miles coast to coast to raise money for BMSTC! 

"Last year I challenged myself to cycle from Newcastle to Edinburgh with my Scottish friends and raised money for Marie Curie Cancer Care. I promised myself I would do it all again this year, this time for the BMSTC. Based in Reading, they provide a friendly meeting place and a range of therapies for people living with Multiple Sclerosis. I do massage therapy there weekly and over the past 10 years have made many friends and been inspired by the dedication of staff and helpers and the personal strength and positive outlook of my clients."

If you would like to sponsor her, please visit her Just Giving Page here!

Tuesday, 4 September 2012

Walking for MileS this Sunday 9th September!

The weather forecast is looking good, so why not come and join us for a lovely day out in Henley and take part in this year's Walking For MileS 2012!  Please register by 11.00 pm on Thursday 6th September to ensure we have your details for the day.  To find out more or register click here!

New European Guidance on Vitamin D


Source MS Trust:

Following a request from the European Commission the European Food Safety Authority panel on dietetic products, nutrition and allergy has produced new guidance on Tolerable Upper Intake Levels for vitamin D supplementation.  For more click here.

Feeling inspired by the Olympics and Paralympics?

Feeling inspired by the Olympics and Paralympics? Have you, or someone you know,  thought about training to run in next year's Reading Half Marathon?  Why not raise money for your favourite charity BMSTC at the same time?!

We have a number of free places and BMSTC will be the top tier charity for 2013! :0)   Please email jackie@bmstc.org or call Jackie on 0118 901 6000.  For more details about the event click here!

Paralympian with MS wins medal!

Source MS Trust:
Congratulations to Stephanie Millward from Wiltshire who won a silver in the S9 100m backstroke.  Read more here!

Soprano Charlotte Skidmore joins Charity Concert

Soprano Charlotte Skidmore, Joins with Adriano Graziani and the Port Talbot Cymric Male Choir to raise money for BMSTC and the Henley MS Supprt Centre on 22nd September.

Tickets only £15 avaialable from pippa@bmstc.org or call Pippa or Jackie on 0118 901 6000.

For more information about the concert click here!