Wednesday, 29 February 2012

Nottingham brain scanners to help MS patients


Source BBC:
High-powered MRI scanners at the University of Nottingham are to be used to research the impact of Multiple Sclerosis on the brain.   For more click here.

Tuesday, 28 February 2012

Purley Downs Golf Club present £4,160 to BMSTC!



Bob Cane, the Captain of Purley Downs Golf Club called into the Centre today and presented me with a cheque for £4,160.00. Bob is the brother-in-law of member Shirley Fisher and has spent the past twelve month raising funds for the Centre.

 Thank you very much for all your support Bob, we really appreciate your help!

Licence application for teriflunomide filed in Europe

Source MS Trust:

Genzyme, the manufacturer of the disease modifying drug, teriflunomide (Aubagio), has submitted an application to the European Medicines Agency for a licence for relapsing remitting MS.  For more click here.

Neurological Alliance response to NHS changes


Source Neurological Alliance:
In January 2011, the Health and Social Care Bill was introduced in Parliament. Since then, the Neurological Alliance’s main concern has been that insufficient attention has been paid to how services for people with less common conditions will be effectively commissioned in a more localised NHS. As such, the new structures outlined in Bill run the risk of reduce the quality and availability of care for these individuals.  For more click here.

New owner for Helen Ley respite centre


Source BBC:
A Warwickshire care centre has been saved after a new owner was found.

The Helen Ley centre in Leamington Spa, which provides respite care for people with multiple sclerosis (MS), was due to close at the end of January.  For more click here.

Cognitive Rehabilitation


Source MS Trust:
Results from a small study show that tasks to help with attention span and planning improved cognitive performance and led to measurable differences in brain function.
Cognition - symptoms relating to thinking, such as memory, attention span or concentration - affect about half of all people with multiple sclerosis to some degree. For more click here.

(Cognitive rehabilitation - Dr Anita Rose will be talking at th MS Information Day about cognitive change in ms. See http://www.bmstc.org/Events/MS-Information-Day---30th-March-2011.aspx)

DOUBLE YOUR MONEY!


Please remember that Localgiving.com will be launching its second matchfunding campaign on Thursday !st March. Once again, anyone making a donation to the Berkshire MS Centre via this site will have it matched - so you will be doubling your donation! Everyone on our database will receive a reminder next Wednesday 29th February with details of how to make a donation.
If you have any questions please call Jackie at the Centre on 0118901600 or email jackie@bmstc.org

Thursday, 23 February 2012

The Health and Social Care Bill explained


Source MS Trust:
The Department of Health has updated its factsheets
The Health and Social Care Bill is in the news almost every day as it is making its way through parliament. Broad changes are proposed for the way that the NHS operates and the way that social care is provided.   For more click here.

Congratulations to Briston MS Therapy Centre!


Source BBC:
A £1.13m centre offering therapy to Multiple Sclerosis sufferers has opened near Bristol.

The charity behind the centre in Bradley Stoke has moved there from Nailsea where it has provided therapy for 25 years.  For more click here.

MS Information Day - 30th March!

Don't forget to book your place for the MS information Day! Exhibitors include: MS Trust, MS Resource Centre, MS Society, Wealden Rehab, Sun Mobility, DM Orthotics, Crossroads, Princess Royal Trust, Novartis, Sirius Automotive, Thames Hospice, Treloar Bus, Talking therapies....oh yes and BMSTC :0)  

For more information see our events page here!

New Therapies - what's around the corner in 2012?


Source Shift MS:
Here’s the second in our vid series from the 3rd Barts and the London MS Research Day. Dr Ben Turner rather marvellously rounds up the treatments we can hope to see coming out in the next few years.  For more click here.

Monday, 20 February 2012

Would you like the chance to win up to £25,000?!

Would you like to win up to £25,000? Why not join the Unity Lottery, the Nations Charity Lottery - 50p in every £1 comes back to BMSTC as profit! 

We have registered with this fundraising scheme and will get 50p for every ticket sold through this new exciting venture! 

You can join the scheme from as little as £4.34 per month to be entered into the weekly draw. You can apply by following this link  or for more details see their website www.unitylottery.co.uk and type Berkshire Multiple Sclerosis Therapy Centre!  Good luck! :0)

Contracts exchanged on sale of Brambles Respite Care Centre


Source MS Society:
Contracts have been exchanged to transfer Brambles Respite Care Centre in Surrey from our ownership to new providers MS Respite & Care Services Ltd - securing its future as a respite centre for people with MS.  For more click here.

Enter our Pamper Evening Grand Prize Draw!

If you cannot make our Pamper Evening on the evening of the 20th March then you can still support us and enter the Grand Prize Draw! £2.00 tickets are available at reception or email kirsten@bmstc.org

For more details on the Pamper Evening click here!

First talk from Shift MS MS Research Day is up!


Source Shift MS:
First talk from the MS Research Day in London is up! Find out about the MS Research Team from Barts and the London and their latest research:  For more click here.http://shift.ms/magazine/2012/02/introducing-the-ms-research-day-in-london/

Thursday, 16 February 2012

Trouser Press for Sale - All proceeds to BMTSC!


For Sale
Trouser press - colour mahogany
Used once
Original price £200
 £100 ONO
All proceeds will be donated to the BMSC
Contact Alison on 0118 9420005 or 07545570571

MS Society Lambing Weekends!


Our good friends the Reading and Wokingham Districts MS Society are holding their popular lambing weekends at Rushall Farm 17 - 18 and 24th - 25th March. 

They are looking for volunteers to either help on the day or to bake a cake/s for either weekend. Please contact Rosemary Tocock if you can help rktocock@btinternet.com or simply support them by going along to enjoy this wonderful event :0)

For more information see their website here!

Wednesday, 15 February 2012

Problems with balance and coordination?

Most people with MS can probably answer YES to this.         

Have you heard of Nordic Walking?                                        
                       
Maybe…. Maybe not

What is Nordic Walking?
Nordic Walking is an enhancement of ordinary walking using poles similar looking to skiing poles.

Physiotherapists in Scandinavia highly recommend this type of activity to a number of people including people with neurological conditions.

By using poles, the walker uses the upper body muscles as well as the legs and the poles help to propel the walker along.

Other advantages of walking with poles worth mentioning are increased heart rate, oxygen uptake and calorie expenditure, reduced pressure on joints, ability to walk more upright, increased safety and support. The activity is less strenuous than the actual level of physical exertion. The combination of exercise and nature may create positive impact on mood. Last but not least there is a social element to Nordic Walking.

A typical lesson will start with warm up exercises using the poles, then the actual walk and finish with some stretching exercises. The activity is easily adapted to the level of fitness of the user. You can actually run with the poles.
 
We are thinking of setting a class up at the MS Therapy Centre in the spring/summer based possibly in Prospect Park.  Criteria for inclusion: ability to walk independently or with one stick. Have a think about it – maybe you would enjoy it?

If you are interested in joining a Nordic Walking group, please contact Henrietta@bmstc.org or 0118 901 6000


Tuesday, 14 February 2012

Tysabri to trialled for secondary progressive MS


Scientists are soon to begin trials to test whether the licensed MS drug Tysabri could be used as an effective treatment for people with secondary progressive MS.  Read more here.





Failure to address mental health problems in people with long-term conditions costs NHS billions


Source MS Trust
A recent report from the Kings Fund and Centre for Mental Health has highlighted the importance of recognising and treating mental health problems in people with long-term conditions. The report calls for better integration between services for physical and mental health problems.  Read more here.

Social care in crisis - help lobby for change


Source MS Society:
A report published by a cross-party group of influential MPs has today found that people who rely on social care in England are being let down by fragmented and under-funded services.  Read more here.

Teenagers with MS


Source MS Trust:
A good relationship with parents is important for emotional well being.
MS is usually diagnosed in people aged 20 to 40 but it can occur in teenagers.  Read more here.

Stall holders wanted for the craft village at Boars Bridge Festvial!


Boars Bridge Festival is over the weekend of the 15th to the 17th June 2012! We are looking for stall holders who would like a place in the "Craft Village" Please feel free to circulate this to anyone who you think might be interested. If you would like tickets for the event please email info@boarsbridgefestvial.co.uk or pippa@bmstc.org Thank you! :0)

Stall holder information click here!

Event information click here!

Wednesday, 8 February 2012

Gowrings Mobility Roadshow 2012 - 28th Feb to ast March at Portsmouth.


Source Gowrings Mobility:

Join us as the Gowrings Mobility Roadshow 2012 visits another interesting and exciting, accessible attraction.

Explosion! The Museum of Naval Firepower
10am-4pm, Tuesday 28th Feb, Wednesday 29th Feb and Thursday 1st March 2012

Escape the winter blues at a special event organised for us, offering free entrance to one of the Historic Dockyard's most enthralling attractions. Come and see us at Explosion.

FREE Parking and FREE entry* for disabled visitors and their carers.

Come and meet the Gowrings Mobility events team next to the Grand Magazine and a selection of local charities based in the cafĂ© that has a view across the waterfront to the Spinaker Tower.  For more click here.

MS Life 2012 - Manchester 14th and 15th April 2012


Source The MS Society:
The MS Society has announced that Manchester is to host its flagship national event, MS Life - Europe’s largest event of its kind – for the third time when it returns to the city from 14th-15th April.

The free two-day lifestyle event will take place at Manchester Central and is aimed at everyone affected by multiple sclerosis (MS), whether personally or professionally.  Find out more click here!

Tuesday, 7 February 2012

MS Information Day places filling fast!

"Embracing Life With MS In Berkshire"

MS Information Day 30th March 2012 at the Hilton Hotel, Drake Way, Reading.   Places are filling quickly.  Booking essential, closing date for registation 10th March.

"MS Specialists, Therapists and Nurses from Berkshire would like to invite you to an information day to be held on 30th March 2012 at the Hilton Hotel, Drake Way, Reading, RG2 0GQ.

This first information day is for people affected by MS within Berkshire has been organised in collaboration with Dr. Faraz Jeddi, Consultant Physicians in Neurorehabilitation and Neurodisability."  

For more information click here.



Had enough of snow?!!



Source Disability Holidays Guide:
Villa Costa Blanca is a specially designed villa which is situated on the outskirts of Torrevieja, Costa Blanca, and is fully accessible to wheelchair users, the elderly and anyone with mobility difficulties.

If you would like a holiday where the winters are warm and the summers are hot and VERY LITTLE RAIN, then you will love it here!   For more click here:

Let's Talk Health Questionnaire

Source Reading Borough Council:
Let's Talk Health Questionnaire - have your say click here to complete survey.

MS doesn't mean....not getting to the bar


Source Shift.MS
MS doesn’t mean giving up on your ambitions, just rethinking how to achieve them. This wasn’t always my attitude—when I was first diagnosed in 2008, at age 23, I felt as though I had to completely reassess my entire life.   Read more here.

The facts about MS


Source MS Trust:
An article published on Tuesday, 30 January 2012 by The Daily Mirror has caused some concern. It was written by Dr Miriam Stoppard, who has a weekly column. The MS Trust was particularly concerned at the number of incorrect facts and statements in the article. A link to the article can be found here and we address the main items of concern here.

Access to fampridine which can help walking for some people with MS


Source MS Trust:
Fampridine is licensed for adult patients with MS who have a walking disability (defined as scoring 4-7 on the Expanded Disability Status Scale) and can only be prescribed by a specialist doctor experienced in the management of MS. The Expanded Disability Status Scale (EDSS) is a widely used measure of neurological disability.

For more click here.

Reading Road Runner and Coach joins Team BMSTC for the Reading Half Marathon!



We are delighted to have Reading Road Runner and Coach, Kathy Tytler to join our team of atheletes at the forthcoming Reading Half Marathon.

Kathy will be running the RHM course in her pyjamas carrying an MS Therapy Centre collection bucket.

Thank you very much Kathy:)

Monday, 6 February 2012

Unity Lottery

Do you want to play a lottery game which would give you a chance to contribute to our Centre and a 1 in 63 chance of winning a prize? Prices range from £5.00 to £25,000.
 
I am trying to gauge if there would be enough interest in starting this at the MS Centre. The lottery tickets are £1.00 each and we receive a percentage for every ticket purchased. You can pay by direct debit, credit card or cheque .We would have to pay a start off cost, and to recoup this and make it viable we would need around 100 regular players.

If you might be interested please email kirsten@bmstc.org or call Kirsten on 0118 901 6000. Thanks :0)