Wednesday, 24 August 2011

Potter star to launch audiobooks


Miriam Margolyes
Source BBC News Berkshire
Harry Potter star Miriam Margolyes has been lined up to launch a new audiobook service at a Berkshire library.

The actress and voice-over artist played the character Pomona Sprout in the Harry Potter films.   For more click here.

Having MS was never going to stop me having a family


Source MS Society
Catherine was diagnosed with MS shortly before her wedding. Putting medication on hold, she was determined to try for a baby. Here she shares her story. (Apprently her waters broke 2 hours after the filming had finished!)  Watch here.

NHS postcode lottery 'keeps £11-a-day drugs from MS victim'



Source The London Evening Standard:
Multiple sclerosis patients in London are being denied a pain-relieving drug by the NHS.
Read story here.

Tuesday, 23 August 2011

Don't forget it's Reading Rock this weekend!


Reading Rock Festival will be on over this coming weekend.  You may find that the roads are busier than usual on Thursday and Friday!
http://www.readingfestival.com/2011/

Cognitive Challenges Effect Postural Balance in MS Patients: A New Study


Source: Health Central:
 
"Have you ever caught yourself swaying a bit while you were deep in thought and using your brain power to work something out? Do you trip just a little bit more when you walk and talk? MS might be to blame."  For more click here.

Coming up this Sunday 28th August on BBC Radio 4 - Choosing to Care

Episode image for Choosing to CareSomething coming up this Sunday which sounds like it could be very interesting.
Broadcasts:
Sun 28 Aug 2011 - 06:05 BBC Radio 4, Sun 28 Aug 2011 23:30 BBC Radio 4

"The choice to care or be cared for is one that faces over half of us and some stage in our lives.
Mark Tully presents an edition of Something Understood to explore that choice and to discuss the emotional, practical and spiritual costs and rewards of caring and being cared for. He examines the benefits and the responsibilities felt within such relationships in the company of Jean and Geoffrey Almond, a couple living with the consequences of Multiple Sclerosis, and with poetry by a variety of carers as well as music from Shostakovich, Elmer Bernstein and folk-singer Kate Rusby."

The readers are Kenneth Cranham and Isla Blair
The producer is Frank Stirling
A Unique Production for BBC Radio 4.
http://www.bbc.co.uk/programmes/b013rgb1




Grab a place in April Fools Half Marathon!



As one of the official charities for the Reading Half Marathon, we have a number of FREE places for next years event. Please email jackie@bmstc.org  if you are interested in runing, or know someone who would be like to support BMSTC :0)

Read Reading Chronicle article here!

Ian Langrish is taking part in Walking for MileS 2011!


Ian Langrish, our BMSTC Chairman, is taking part in this years Walking for MileS event on the 25th September. If you would like to support him, please visit his Just Giving page. Thanks :0)

http://www.justgiving.com/Ian-Langrish1

New! MS Society Exercise DVD


The MS Society has released a new exercise DVD for people with multiple sclerosis (MS) presented by former Olympic champion Sally Gunnell OBE.

Order your free copy click here! 


Thursday, 18 August 2011

See who Jackie, our Fundraiser Found whilst planning Walking for MileS 2011!

Our Fundraiser Jackie,  was testing out the half marathon walk for our Walking for MileS event and came accross this familiar character enroute! We thought it was Shrek! What do you think?? The event will be held on Sunday the 25th September see the events page on our website for more details. www.bmstc.org

Gowrings Mobility Roadshow and Free entrance to Cotswold Wildlife Park!

Gowrings Mobility LogoJoin us as the Gowrings Mobility Matters Roadshow visits another interesting and exciting, accessible attraction.

Cotswold Wildlife Park and Gardens,
10am-4pm, Tuesday 13th, Wednesday 14th and Thursday 15th September 2011

Enjoy a wonderful day out with a fascinating and varied collection of mammals, birds, reptiles and invertebrates from around the world, all set in 160 acres of parkland and gardens.

Come and visit the Roadshow for FREE, including FREE entry to Cotswold Wildlife Park & Gardens* – save up to £12.50 per person.  For more info click here!

Wednesday, 17 August 2011

Walking for MileS 2011 - Sunday 25th September Henley-on-Thames

Come and join us for this years Walking (and wheeling!) for MileS on Sunday 25th September starting at the River and Rowing Museum, Henley-on-Thames.  We have 3 delightful walks for you to chose from!  For more information please see our events page here!

Please support Julie Carn and her sister Yvonne Parks, BMSTC Trustee and Member

If you would like to support Yvonne Parks, BMSTC Trustee and Member and her sister Julie who took part in the Goodwood Roller Marathon last Sunday please visit their Just Giving Page here!  Well done girls, great job! :0)x

MS Trust Exercises for people with MS


Source MS Trust:
Regular, moderate exercise is now recognised as an important element in maintaining general health and well being.
There is no right or wrong exercise. However, the nature of MS may mean that you have to be more aware of what you can achieve than someone who doesn't have MS. If you have concerns about undertaking certain activities, talk to a relevant health professional (eg a neurologist, GP, MS specialist nurse, physiotherapist, occupational therapist) beforehand.  See more here.

'Amazing' new cancer treatment coming to Seattle


Source Seattle pi:

"Think about diabetes, multiple sclerosis and the other types of auto-immune disease," says Dr. Jensen. "Potentially, T-cell therapy could be used to turn off a damaging auto-immune disease."  For more click here.

Help the MS Trust to win £500!


Source MS Trust:

Help our video go viral and the MS Trust could win a £500 donation!
The story of the MS Trust rubber duck has been brought to life...
Please watch The Story of Rubber Duckling to help us win JustTextGiving's video competition. If our video has the most views by 23rd August, the MS Trust will win a £500 donation! Once you've watched our video, please share it with all your friends as well.   For more click here

MS Society Event: Living and working with MS - Basingstoke


Date: 24 September 2011 to 24 September 2011
Location: Hilton, Basingstoke

When and where is it?
The information day is taking place on 24 September at the Hilton Basingstoke. The day will start with registration between 09:00-10:00 and will finish at 15:45. See more information here.

Welcome to Sportability!


Suggested from one of our members:"Sportability organises sporting activities for people with various conditions, including MS. I did a quad-biking day with them last year and am on their email updates for all sorts of unusual activities, including sailing, off-roading and even microlight flying! People with MS are eligible to join their activities and they have specially adapted equipment for those with mobility problems."

The Pedalo Challenge Team finish their quest!


The dynamic due finished their quest of traversing the River Thames from is navigable source at Letchlade to Teddington Lock in Middlesex on a pedalo on Sunday 14th August. Well done to the boys for raising just under £5,000!! If you would like to sponsor them to help take them up to the £5k mark then please visit their Just Giving Page here! Congratulations boys!! :0)

Friday, 12 August 2011

Pedalo Challenge Team

James and Neil were welcomed to Reading by our Patron, Sir John Madesjki, at a reception at the Crowne Plaza Hotel on Tuesday 9th August.

The boys have really caught the attention of the press with articles appearing in the Reading Post, Reading Chronicle, Henley Standard, Staines News and appearances on BBC Radio Surrey and BBC Radio Berkshire who are closely following the dynamic duo on their quest to traverse the Thames for it's source at Letchlade, Gloucestershire to Teddington Lock in Middlesex, 207 km!!  They are due to finish their epic journey this Sunday.  If you would like to show your support please visit their Just Giving page.  http://www.justgiving.com/ThePedaloChallenge

How do older people in Reading want the Council to work with them?


Source: Reading Borough Council:

Reading is a great place to live, with a local economy which is well placed to ride out the current economic downturn; improving local schools; high quality public transport; well used parks and open spaces; an (almost) Premiership football team and a town centre which is a destination for people from miles around.
Reading is full of great people. It is the people of Reading who have made the town a success and a place to be proud of. The new Council administration believes that Council services can work better and be more responsive if the people of Reading are more involved in how we run them.   Complete consultation here.

Will Davies - YouTube Video of Wills Jump!

Not for the feint hearted!! You can watch Will Jump here!

It's not too late to sponsor him!  Please visit his Just Giving Page  http://www.justgiving.com/William-Davies3

Daclizumab demonstrates significant reduction in relapse rate


Source: The MS Trust:

Daclizumab, a monoclonal antibody, has been found to significantly reduce annualized relapse rates in people with relapsing remitting MS in the SELECT trial.   Read article here.

Genetic clues to what triggers MS


Source: BBC
Around 30 genetic risk factors for developing multiple sclerosis have been discovered by a UK-led team.

It brings to more than 50 the total number of genetic clues to the disease.  Read article here.

BMSTC Facebook Page

Don't forget you can join BMSTC on Facebook! 

Share your news and views with others!  To receive our posts in your newsfeeds go to our page and click "Like"

http://www.facebook.com/BMSTC

Shine On MS Social Network - A Social Network for people affected by Multiple Sclerosis


New MS Social Network - "Shine On MS is a community for people affected by Multiple Sclerosis, MS Groups, researchers, campaigners and activists. Users can share, get support and interact with other members.

Register now to create a profile, plot yourself on the map and start adding your voice to our community."  You can join the BMSTC Group!   For more click here.  

Yvonne Parks, BMSTC Memeber and Trustee is taking part in the Goodwood Roller Marathon!

Yvonne Parks, BMSTC Trustee and member, is taking part in the Goodwood Roller Marathon on Sunday 14th August with her sister Julie raising money for BMSTC. They aim to roller skate 12 miles around the track! If you would like to support them, please visit their Justgiving page!

http://www.justgiving.com/julie-Carn

:0)

Music bands unite to raise money for the MS Society

Source: MS Society:
Indie bands Ash and We Are Scientists have joined forces and recorded a single, ‘Washington Parks’, to raise awareness of MS.  Read story here.

Disabiltiy Rights Partnership


The Disability Rights Partnership is the working title for the proposed merger between Disability Alliance, NCIL and Radar. The merger is on the agenda for the existing charity AGMs in September/October 2011.  Read full article here

Draft NICE guidance would deny up to 5,500 people with MS a valuable extra treatment option


Source: MS Trust
MS Trust is disappointed that draft guidance from NICE recommends that fingolimod (licensed under the Novartis owned trade name of Gilenya) should not be made automatically available to people with multiple sclerosis on the NHS.   Read full article here.

Two possible treatments for relapsing remitting MS show promise in clinical trials


Source: MS Trust
Initial results for two treatments in development for relapsing remitting MS, laquinimod and ponesimod, have just been released.

Laquinimod affects the levels of certain cytokines (substances released by immune cells) and reduces the passage of immune cells into the brain and spinal cord. Laboratory studies suggest it may have both neuroprotective and anti-inflammatory actions.  Read full story here.

Thursday, 4 August 2011

MRI scanner inspires a multimedia performance

Source: The BBC

Composers Mira Calix and Anna Meredith have come up with pieces of music which are inspired by the sounds of a MRI (magnetic resonance imaging) scanner.

Their compositions are performed by members of the Aurora Orchestra and blend acoustic and electronic sounds.

To accompany the music, art and design studio Loop.ph transformed Wilton's Music Hall in London with a multimedia installation called Neural Nest.

MRI scans use magnetic fields and radio waves to produce a image of the inside of the body.  Watch here.

The Faster Than Sound: Brainwaves concerts are produced by Aldeburgh Music 

Multiple sclerosis stem cell trial to go ahead

Source: The BBC
Researchers are preparing for a Europe-wide clinical trial to investigate whether stem cells can be safely used to treat multiple sclerosis.
It is hoped the study could offer a way to slow or even reverse the damage caused to the brain and spinal cord by the condition. Pallab Ghosh reports.  Watch here.

Congratulations to Will Davies for completing his Golden Eye Bungee Jump!!


If you would like to support Will then please visit his Just Giving Page here!

The Pedalo is a-go-go!

The Pedalo Challenge team have set off on their journey today traversing the River Thames from it's navigable source in Lechlade, Gloucestershire to Teddington, Middlesex.  Our Patron Sir John Madejski will welcome them to Reading as they pass through on Tuesday 9th August.

If you would like to welcome them when they reach Reading then please come along to Caversham Bridge or the Caversham promenade at about 12.30 on Tuesday 9th August and cheer them on!   If you would like to sponsor them, please visit their Just Giving page here!

Article in the Midweek Chronicle on Wednesday 3rd August

Stem cell trial has identified enough potential participants

Source: The MS Society:
Hundreds of people with MS came forward on Friday after the MS Society and the UK Stem Cell Foundation announced we were to jointly fund a clinical trial to test whether stem cells can be used to treat MS. Researchers have now confirmed they have identified enough participants for the trial and will not be able to consider anyone further.  For more details click here.

Two possible treatments for relapsing remitting MS show promise in clinical trials

Source: The MS Trust

Initial results for two treatments in development for relapsing remitting MS, laquinimod and ponesimod, have just been released.  For more click here.

The Age UK Handyperson Scheme

This scheme run by Age UK is not only to older people but also exteneds to cover all people with disabilities. The scheme now has 7 handymen who between them cover Wokingham, West Berkshire and a newly expanded Bracknell Forest. What a great service!  For more visit their website here.

Tuesday, 2 August 2011

Blue Badge Disabled Parking Scheme Changes

Owned by the Department for Transport (DfT) and managed in Surrey by Surrey County Council, there will be some updates and changes to the system in January 2012.

The main changes are:

The fee will increase from £2 to £10 per badge from 1st January 2012 (this is the first fee increase in nearly thirty years).
The badge will have a new design which will be printed on a plastic type card.

This will make it harder to copy, forge or alter.

Blue Badges will be distributed from a central print house rather than directly from Surrey County Council and a central UK database of blue badge holder will be held by the DfT.

There will also be an on-line application facility, which should help enable quick
turnaround for people who are renewing their blue badge whose circumstances
have not changed. There will be one standard on-line application form.
Severely disabled service personnel and veterans will get continuous automatic
entitlement to a badge if they receive specific tariffs of the new Armed Forces
Compensation Scheme and have a permanent mobility-related disability.

There are some questions and answers available to view here.

The guidance notes for local authorities will be updated soon and these will also
be available for any member of the public to view.

Further information is also available on the Surrey County Council website and If
you have any questions you can use the feedback button if you wish to email
further questions.
www.surreycc.gov.uk/bluebadges
Alison Wright Blue Badge and SALDR Team Manager