Wednesday, 31 March 2010
The Essential Health Clinic has limited availablity for CCSVI scanning in August, July fully booked.
Peterborough PE2 6XE
Tuesday, 30 March 2010
These are some of the comments that we received back from the organisers that we though you might like to read.
“The people of Reading are magnificent, with support almost the entire way round. The noise inside the stadium was stunning and the band under the bridge near the Oracle made my hair stand on end! I had a brilliant time, came in under 2 hours and would definitely do this again.”
“Great organisation, brilliant atmosphere and crowd support. Possibly the first time I've ever seen a Primark and not gone in”
“What an excellent race!!! Organisation, stewards & helpers brilliant!!!”
Friday, 26 March 2010
Thursday, 25 March 2010
A former model who is now chronically ill and struggles just to shower says the people she has met online have become her family. A quadriplegic man uses the Web to share tips on which places have the best wheelchair access, and a woman with multiple sclerosis says her regular Friday night online chats are her lifeline. http://www.msrc.co.uk/index.cfm?fuseaction=show&pageid=2479
Wednesday, 24 March 2010
Cruises normally start and finish at the River and Rowing Museum in Henley-on-Thames at either 10.30 am or 2.30 pm and last for approximately 2 hours. Regrettably they are unable to consider individual bookings, but if we can get a group of 12 people interested including their carers I will write a letter of application for them to consider provinding us with a trip. If you're interested please let me know firstname.lastname@example.org or call 0118 901 6000
For more info please see www.rivertimeboattrust.org.uk
The European LDN Conference will be held in Glasgow on 24th April 2010.
We wanted to tell you about an important event taking place this April. If you suffer from, or know of people effected by MS (Multiple Sclerosis), or other debilitating inflammatory conditions such as Chronic Fatigue Syndrome and Fibromyalgia, you will be very interested in The 2nd European LDN Conference.
Also find out the latest information on CCSVI from Dr Tom Gilhooly
Taking place in Glasgow on 24th April, 2010 at the Thistle Hotel in Cambridge Street, The 2010 European LDN conference is again organised by Dr Tom Gilhooly of the Essential Health Clinic in Glasgow with support from Linda Elsegood and the LDN Research Trust. According to Dr Gilhooly, “Following the success of last year’s inaugural conference, we are returning to Glasgow. There have been a number of important developments in the past year and this year’s conference is set to be a landmark event.” The conference is sponsored and supported online by BIG ON Glasgow.
LDN – Low Dose Naltrexone – was initially developed as a treatment in the United States in the 1980s. Working with opiate addicted patients, it was realised that in low doses, Naltrexone could actually be used to increase endorphin levels, effective in the treatment of MS. It was first used as a treatment for MS in 1985.
The conference website http://www.bigonldn2010.com/ contains the agenda, registration form, venue details plus more information, news and videos on LDN. The website also offers the opportunity to join BIG ON LDN forums.
How to BookYou can book online, securely via the Essential Health Clinic website. http://www.essentialhealthclinic.com/website/
Tuesday, 23 March 2010
Monday, 22 March 2010
From the MS Resouce Centre Webiste:
CCSVI Press conference at False Creek Healthcare Centre. Featuring Dr. Mark Godley and Dr Marian Simka:
Thursday, 18 March 2010
Wednesday, 17 March 2010
Tuesday, 16 March 2010
You can drag and drop the time bar to around 46 minutes into her show to hear the interview:
Monday, 15 March 2010
A reward of £12 will be posted to each person who completes the survey after the study is over— or you can specify that the reward be donated to the patient group of your choice.
All responses will be confidential, and all information given will be studied in aggregated form only, and will then be deleted at the end of the study period. At the end of the survey, you will be asked to fill in address details for us to send the reward cheque.
You can take part in the survey by clicking on the link below:
The survey is due to close on Wednesday, 31st March 2010, but we would appreciate any replies to the survey before that date, to establish some early trends.
If you have any further questions about the survey, please do not hesitate to contact me.
Paul Eccles, PhD
Senior Research Executive,
Opinion Health, 11 Poland Street, London, W1F 8QA, UK.
Friday, 12 March 2010
Tuesday, 9 March 2010
"Helen Yates, Chief Executive of the Multiple Sclerosis Resource Centre (MSRC) said: “Whilst the case of the man who had to have open heart surgery to deal with a slipped stent is accurate, the case of the woman who had a haemorrhage is less so. The lady in question had a pre-existing condition that meant she was much more susceptible to haemorrhage, in fact it has been ascertained since her death that it was nothing to do with the procedure at all and was, in fact, an adverse drug reaction to one of the blood thinning drugs exacerbating a genetic familial problem. The first case is, of course, a reminder that no procedure is without risk and with stenting, there is always a slight risk of the stent coming loose."
This post has been a long time coming. I am so glad -and relieved- to finally be able to officially tell you all about the professional organization that a group of us have been building: CCSVI Alliance From ThisIsMS webiste:
From ThisIsMS webiste:
In this special MS Society online awareness talk, Professor Richard Reynolds, director of the MS Society Tissue Bank, discusses why the tissue bank is important in MS research and how it started.
The Daily Telegraph has reported that "vitamin D 'triggers and arms' the immune system". It said that researchers believe that vitamin D plays a key role in boosting the immune system.
Monday, 8 March 2010
New and increased charges for elderly, ill and vulnerable people using social care services are set to be introduced in West Berkshire and Wokingham.
It is one of the areas set for big changes as local councils look to make savings after their budgets were cut.
Thank you for contacting us and for your support.
We are in the process of re-evaluating our next steps. Some of the team will be focusing on the political aspect, others on the medical professionals and it has been mentioned to hold a worldwide demonstration asking governments to accelerate research into CCSVI and MS.
Two ways you can help from now:
1. One sure fire way is for people to talk to their neurologists to try and gather support for research to start in this country.
2. Or if anyone already knows of a neurologist who supports CCSVI please ask them if we can pass their details to MP Richard Taylor who is offering to help us, but he needs us to find neurologists who support us.
Thank you again for your support.
Friday, 5 March 2010
Last year I went to the First European LDN conference in Glasgow and it was absolutely fabulous. Some of you have read the report I had put into the August newsletter. I’ve just received notification of the new conference website. Have a look around it, register and go there if you can. I know I will, I wouldn’t want to miss it.
"Here at ms-ccsvi-uk we are trying to raise awareness from the bottom up and the top down. It is heartening to know that there are people out there managing MS Therapy Centres who are responding to their member's requests for information. If some of you attend a therapy centre, find out if they want info about CCSVI.... We can mail it or if it is near a member of our team we can come and talk..."
Also, even more now with an ageing population, people are wanting to drive until they are older and this places quite a strain on general practitioners who will be asked by patients about their ability to continue driving or return to driving, or for the general public who themselves have concerns regarding their mobility following an illness or general health.
We feel that this is where we are able to support all organisations who can suggest to their patients/clients that they attend the centre for a practical assessment of their ability to drive providing that they meet the current DVLA regulations of medical fitness to drive.
The fee for a driving assessment is subsidised, currently £80. The fee for a passenger assessment is again subsidised, currently from £20. All fees are stated on the Application Form which can be downloaded from our website www.rdac.co.uk The website holds invaluable information that we hope you will find useful.
Thursday, 4 March 2010
From the MS CCSVI UK Webiste:
"The aim of MS-CCSVI-UK is to raise UK awareness of CCSVI and its potential influence on Multiple Sclerosis and to support the commissioning of research in the UK, to prove or disprove Prof. Zamboni's hypothesis.
Making use of the power of the internet to contact people and mobilising them to lend their voice to this cause we hope to bring Chronic Cerebro-Spinal Venous Insufficiency (CCSVI) to the attention of the government and politicians, the medical profession and MS support systems, the press and the media. We do not know what the results of the research will show, but until trials take place people impacted by MS will feel as though they are being ignored. A large number of MS sufferers feel, maybe even know that this theory makes more sense than the theory of autoimmunity. And considering the evidence available so far they are probably right. But probably is not good enough."
You can register to join their forum on their website: http://www.ms-ccsvi-uk.org/home/home.html
A MOTHER from Seaford said her MS sufferer daughter has shown initial improvements after travelling to Poland for tests
Wednesday, 3 March 2010
A comprehensive, international and up to date information resource developed by MS experts worldwide.
Tuesday, 2 March 2010
Healthy Talking CCSVI newsletter has now left to all the sign ups. If you want to sign up for CCSVI NEWS please go to www.essentialhealthclinic.com where we have a special CCSVI page.
Monday, 1 March 2010
Results of a phase II clinical trial testing the safety and effectiveness of low-dose naltrexone (LDN) as a symptom-relief treatment for people with MS have been published in the journal Annals of Neurology. The journal reported positive outcomes for mental quality of life, but no impact on physical quality of life in people with MS.
Marlo is in her early thirties, American and has moved to