Thursday, 23 December 2010

Long Term Conditions: Joint Commissioning Strategy - Have your say

Reading Borough Council are inviting everyone to comment on their proposals. This includes people with long term conditions including HIV/AIDS, neurological conditions, physical disabilities and sensory impairments. They are also keen to receive comments from service users, patients, their carers, volunteers and professionals involved in their care as well as local councillors and MPs.  For more click here.

Cash cuts for councils announced

From the Reading Chronicle:

READING faces the second biggest cut to council finances in Berkshire - and the biggest in cash terms.


The cut in the council’s ‘revenue spending power’, taking into account all the various grants from Government, the council tax freeze and a new scheme in which NHS funding has been redirected towards social care, is £6.2m next year, or 4.26%.  Read full article here.

Health bosses issue Berkshire flu jab warning

From the Reading Chronicle:

BERKSHIRE health bosses are urging those at risk to get their flu jab.  Read article here

Vitamin D - New Guidance

From the MS Trust:

A number of health organisations including Cancer Research UK and the MS Society have issued guidance on vitamin D which considers a number of areas:  For more click here.

Disabled badges stolen from cars in Reading

From BBC Berkshire:
Thieves have stolen disabled badges from five cars in the space of two days in Reading, Berkshire, police have said.


The blue badge thefts all took place in the Whitley area of the town since Monday.  Read article here

Tuesday, 21 December 2010

BMSTC bags £3,000 NatWest Community Award!!

A huge vote of thanks to all of you who voted for us to recieve a NatWest Community award. Looked on their website today to see we get top vote and receive a £3,000 award! What a great Christmas present with thanks to all of our supporters - thank you! :)

https://communityfund.natwest.com/VoteFinal/Details

Monday, 20 December 2010

BMSTC - Snow news!

We have had to close early today (Monday 20th December) due to adverse weather conditions. We do hope to be open for business as usual this week but advise people to check their appointment before setting out on their journey if the snow continues!  Thanks :0)

Thursday, 16 December 2010

BMSTC Christmas closing and opening

BMSTC will be closing for Christmas at 1.00 pm on Friday 24th December and re-opening on Tuesday 4th January 2011.  Best wishes to your for a very happy Christmas! :0)

The government is simply bullying disabled people

The Guardian:
Vital sources of support for disabled people are being torn from them, and myths about benefits encouraged


Read article here.

Medical charities unite to emphasise importance of vitamin D

From the MS Society:

Guidelines released today highlight the importance of maintaining healthy levels of vitamin D, whilst still remaining safe in the sun.  For more click here.

Half of Carers "made ill by job"

From Nursing Times:
The role of looking after a friend or relative is causing health problems among half of carers, a report has claimed.  For more click here.

NHS change - a risky business?

From the MS Trust:
Think tank Civitas - the Insitute for the study of civil society - today published a report A risky business: the White Paper and the NHS. This considers the NHS White Paper, Equity and Excellence: Liberating the NHS, in particular the plan to transfer commissioning from PCTs to GP consortia. Primary Care Trusts are to be abolished by 2013, when GPs will plan hospital care and manage budgets to pay for it.   For more click here.

Tuesday, 14 December 2010

Send Everygreeting Christmas eCards and raise money for BMSTC

With Everygreeting, this Christmas you cna send a little more than just good cheer!

Click on the link below for more info:

http://www.everygreeting.com/?cid=249&cn=Berkshire+MS+Therapy+Centre

Berkshire council cuts announced

From the BBC:
Slough faces the the deepest budget cuts of Berkshire's six councils after the government revealed provisional details of its English council grants.


Slough Borough Council will have 4.86% less to spend on services in 2011/2012.

Wokingham Borough Council will have to make savings of 0.63% by comparison and the Royal Borough of Windsor and Maidenhead 1.06%.

Leader of Slough's Labour-run council Rob Anderson said the borough's cuts were politically motivated.

For more click here.

BMSTC Christmas Party!


We will be holding our Christmas Party on Friday 17th December from 1.00 to 3.00 here at the Centre.

We are delighted to welcome Wilson Road Primary School who will sing a few festive Christmas Carols.  Come and socialise with our MS Members, Volunteers, Staff and Trustees.  Light snacks will be served but please do bring a bottle!

We hope you can make it!


Independent Living Fund to be shut down by 2015

From the BBC:
A fund which supports more than 21,000 people with severe disabilities is to be phased out by 2015.


The £359m Independent Living Fund pays out an average of £300 a week, to help people pay for carers so they can live at home and not in a care home.  For more click here.

New Bracknell health centre plans submitted

From the BBC:
Plans for a new health centre which would provide urgent care as well as routine medical services have been submitted in Berkshire.


Berkshire East Primary Care Trust wants to build the one-stop centre at the Skimped Hill site in Bracknell. For more click here.

Virgin Money Giving ‘Click a Christmas Wish’

Your Christmas greetings could make a difference to your chosen charity this year. Simply set up a Virgin Money Giving ‘Click a Christmas Wish’ fundraising page, send your friends and family an e-card and donate the money you would’ve spent on cards and stamps to your charity.

http://uk.virginmoneygiving.com/giving/cl...ick-a-christmas-wish/index.jsp

Reading Half Marathon update

Fantastic news - We've got 33 runners that we know about running for us in the 2011 Reading Half Marathon! We still have 2 places left which are like gold dust! Get in touch with us asap by emailing jackie@bmstc.org  if you want to run on behalf of BMSTC! This event is now our biggest fundraiser of the year!! :0)

JLS star signs up for MS fundraiser

Source the Daily Echo:

BEFORE going on stage at Bournemouth International Centre, JLS star Oritse took time out to meet young carers following in his footsteps.


Oritse was just 11 years old when his mother was diagnosed with multiple sclerosis. He dreamed of being a singer, but his thoughts turned to finding a cure for the debilitating disease. Read article here.

MS news in the press - handle with care

From the MS Trust:
Everyone is looking for the next great breakthrough in managing or reversing MS. A couple of recent stories illustrate why the promise in the headlines should be treated with a degree of caution.   Read article here.

UPDATE 2-Teva multiple sclerosis pill shines in big study


From Reuters:
Teva Pharmaceutical Industries (TEVA.TA) (TEVA.O) expects its pill-based treatment for multiple sclerosis to receive U.S. regulatory approval within two years after a clinical trial met its main goal, it said on Thursday.  For more click here.

Thursday, 9 December 2010

GPs will trial new policy

From the Reading Chronicle:

A GROUP of GP surgeries from the Reading area has been chosen to lead one of the biggest shake-ups in the history of the NHS.


The 18 practices, which serve more than 100,000 people in south Reading, will be among the first in the country to test-run radical Government proposals to give doctors control of the NHS purse strings.  Read full article here.

Vitamin D, the cure-all supplement that could be bad for your health

From the Independent:

It is called "bottled sunshine" and claimed to be one of the most effective health supplements on the market. Scores of studies have suggested that it protects against heart disease, cancer, diabetes, high blood pressure, schizophrenia and multiple sclerosis, and a growing number of doctors have recommended it to their patients.  Read full article here.

MS Society trustees cleared over row with Scottish council

MS Society trustees cleared over row with Scottish council

From the Civil Society:

Trustees of the MS Society have been cleared of wrongdoing in suspending the powers of the organisation’s Scottish Council, with the Charity Commission confirming that they acted on specialist legal advice in good faith at all times.  Read full article here.

Eating purple fruit could fend off Alzheimer's Disease and Multiple Sclerosis

From the Telegraph:

Eating purple fruit could fend off Alzheimer's Disease and Multiple Sclerosis


Eating purple coloured fruit such as blueberries could help ward off Alzheimer’s, Multiple Sclerosis and Parkinson’s because it soaks up harmful iron compounds, new research suggests.  Read article here.

Blueberries 'help fight diseases'


From Yahoo news:
Blueberries and green tea help the body take an iron hand against diseases such as Alzheimer's, Parkinson's and multiple sclerosis, research suggests. Read full article here.

Wednesday, 8 December 2010

BMSTC User Survey

If you receive treatment, or have received treatment at the Centre in the past 3 years you should have received our user survey to complete.  Thanks to everyone who has taken the time to return these, it helps us to develop our services to better meet the needs of our service users.  We also get some great comments back which we can use in publications such as our annual report....

"Ruth (our Physio Manager) gave me not only physical support but also emotional and psychological support which helped me get out of a bad patch; get back to work and flourish! Thanks so much to all at the BMSTC for helping me to live with my MS in a positive way, and for letting me know I am never alone."

Thank you for your feedback!

Scientists explore how to repair MS damage

From NHS Choices:
Scientists have announced a "revolutionary" discovery that could reverse the nerve damage and paralysis caused by multiple sclerosis, reported the Daily Express.

Read full article here:

Purdue research finds a clue in the multiple sclerosis puzzle

From jconline.com:
Last Friday morning, physical therapist Carol Krueger-Brophy helped Sandra Borders inch across the room. Borders held tightly to her walker and with every step, she tried to regain her ability to walk.


"I want to walk again," she said. "I want to be independent again. For me, the lost of independence was just devastating."

Borders' independence was stripped from her after a recent attack from multiple sclerosis, a debilitating disease where the body's immune system nibbles away at the protective sheath surrounding the nerves.

Read full article here.

Biogen Idec Awards Clinical Fellowship Program Grants to Support Education and Research for the Treatment of Multiple Sclerosis

From Boston.com:
As part of its commitment to furthering the quality of education in the field of multiple sclerosis (MS), Biogen Idec (NASDAQ: BIIB) is proud to announce that it provided grants to twelve prestigious universities and medical centers across the country for the 2010-2011 academic year. The grants were awarded through the Biogen Idec MS Clinical Fellowship Program and provided a total of $900,000 to recipients for the placement of clinical MS Fellows.

Read full article here.

Tuesday, 7 December 2010

Reading Borough Council launch 12 week consulation on adult social care

Reading Borough Council have launched a 12 week consultation on some proposed changes to adult social care. Everyone who uses RBC adult social care services at the moment will receive a letter about this, including a questionnaire to complete. No decisions will be taken about whether to go ahead with the changes unti...l next year, at this stage RBC are simply asking people to comment on the principles involved.

For more info click here

What is the MS service like in your area?

From the MS Trust:
Early next year the MS Trust, in partnership with the Royal College of Physicians, will be undertaking the third survey of MS services in England and Wales and we would like you to take part.  For more info click here.

UK Multiple Sclerosis Society - MS Frontiers speakers biography on Professor Robin Franklin

From the MS Society:

Robin Franklin is Professor of Neuroscience at the University of Cambridge.


He has joint appointments at the Department of Vetinary Medicine and at the Cambridge Centre for Brain Repair. He is Director at the MS Society Cambridge Centre for Myelin Repair. Professor Franklin studies regenerative processes in the adult CNS. A particular focus has been the mechanisms by which adult neural stem/precursor cells are able to generate new oligodendrocytes following demyelinating disease.  Watch video here.

Monday, 6 December 2010

Myelin repair a reality, says MS Society research

From the MS Society:
Groundbreaking MS Society research has shown that damage to myelin can be reversed using stem cells.  Read article here.

MS treatment breakthrough 'exciting'

Listen to the BBC Radio 4 Today:
Neurological damage caused by multiple sclerosis could be reversed by encouraging the brain's own stem cells to repair themselves, according to a new study.   To listen click here.

Thursday, 2 December 2010

UK Disability History Month

UK’s first ever Disability History Month (UKDHM) taking place on the 22nd November to 22nd December 2010


The month will be about giving a voice to our history. It is about celebrating the lives of disabled people, recognising our rights and the past struggles for equality.

For more info click here.

Carers Rights Day 3rd December 2010

Carers Rights Day 3rd December 2010 - This year Carers Rights Day, a national campaign run by Carers UK is looking at carers rights and the new protections provided by the Equality Act which is coming into force this autumn.


For more details click here.

Mike Laver from the MS Trust honoured at national business awards

From the MS Trust:

Trustee of the MS Trust, Mike Laver, has been honoured at the 2010 Barclays Trading Places Awards, which recognise people who have beaten the odds to succeed in business.  Read article here.

Virgin Money Christmas Cards!

You can help to raise money for the Berkshire MS Therapy Centre by sending Virgin Money Giving e-cards this Christmas! :0)

http://uk.virginmoneygiving.com/giving/click-a-christmas-wish/index.jsp

Assisted dying inquiry backed by Terry Pratchett starts

From the BBC:
An inquiry into assisted dying has been launched with funding from author Sir Terry Pratchett, a supporter of helping terminally ill people end their lives.

Read full article here.

Multiple sclerosis, seizures, and antiepileptics: role of IL-18, IDO, and melatonin

From the European Journal of Neurology:

To review the treatment and mechanisms underlying the increased prevalence of seizures associated with multiple sclerosis (MS). We carried out an extensive review of the literature pertaining to seizures in MS. Read full article here.

Simon Gillespie in BBC Radio Scotland

From the BBC:

Simon Gillespie was interviewed on the subject of Leuchie House. The interview can be found at approximately 54 minutes in on the link below.


http://www.bbc.co.uk/iplayer/episode/b00w6cng/Good_Morning_Scotland_30_11_2010/

Tuesday, 30 November 2010

London Gold Party at BMSTC - Tuesday 7th December!

Got any unwanted or broken gold jewellery hanging around that you would like to turn into extra cash for Christmas?

Then when not come along to our London Gold Party here at the Centre on Tuesday 7th December 11.30 am -6.30 pm!

The London Gold Company:
• Give a no-obligation quote to buy your gold
• If you decide to sell, you receive cash immediately
• Competitive prices for any karat gold
BMSTC will receive 7.5% commission on all sales!


Visit our events page for more details here.

She's shaking off disease by belly dancing.

From the MetroWest Daily News:
Since she was diagnosed with multiple sclerosis, Anna Connors keeps her limbs limber and her spirits strong by belly dancing.


A former high school gymnast and dedicated marathoner, she'd always been healthy and active.  Read article here.

Assisted suicide law to be reviewed by Lords

guardian.co.uk home
From the Guardian.co.uk

Commission aims to clarify legal position both for terminally ill and loved ones. But campaigners fear sufferers could be pressured into ending life.  Read full article here.

Westbury woman talking up a vital service

From the Wiltshire Times:

A Westbury woman who suffers from multiple sclerosis has praised the Royal National Institute of Blind People’s talking books service on its 75th anniversary.   Read article here.

Reprieve for East Lothian MS respite care centre

Leuchie House

From the BBC News:
Scotland's only respite centre for those affected by multiple sclerosis has been given a reprieve at the 11th hour.


The centre in East Lothian, due to close next week after a high-profile campaign to keep it open, is to be funded for at least another six months.

The Multiple Sclerosis Society in London has pledged the funding.  Read full article here.



Thank you to everyone who voted for BMSTC!

Thank you to everyone who voted for us to receive a NatWest Community Award. They will be announcing the results mid December - we'll let you know how we get on as soon as we hear. Thanks again for your support, much appreciated :0)

Monday, 29 November 2010

Sir John steps up for MS charity

From Getreading - the Reading Evening Post

(Our apologies to other MS Therapy Centres or specialist MS Centres for the misquote that we are the coutnry's largest specialist centre for MS! :)

The country’s largest specialist centre for multiple sclerosis (MS) has welcomed Sir John Madejski as its newest patron.


Located in West Reading, the Berkshire MS Therapy Centre offers treatment to sufferers of the degenerative disease across the south of England and Sir John was so taken by the work of the volunteers at a recent visit, he agreed to put his name to the charity.  Read full article here.

Are you fed up with writing Christmas Cards?

From the MS Society:

Are you fed up with writing and posting Christmas cards? Do you want an environmentally friendly alternative to paper cards? Send an MS Society Christmas eCard to your friends and family and support a great cause at the same time.  For more info click here.

Friday, 26 November 2010

Research suggests link between environmental pollutant and MS

From the MS Society:
An American study has suggested that acrolein, commonly found in cigarette smoke and exhaust fumes, may play a part in MS. This was very early research carried out in a laboratory and has not been investigated in people with MS.  Read article here.

Regulatory T cells exhibit enhanced migratory characteristics, a feature impaired in patients with multiple sclerosis

European Journal of Immunology

From Wiley online library :
Abstract
Migration of immune cells characterizes inflammation and plays a key role in autoimmune diseases such as MS. CD4+Foxp3+ regulatory T cells (Treg) have the potential to dampen immune responses but show functional impairment in patients with MS.   Read article here.

Thursday, 25 November 2010

Virgin Charity Credit Card!

Thinking of switching credit card? Why not have a look a the Virgin Charity Credit Card and help raise money for your chosen charity when you spend! If you want to find us on their website look for BMSTC !



http://uk.virginmoney.com/virgin/charity-credit-card/charities/

Council seeks users views on community care

From Get Reading - Reading Evening Post:

"Around 4,000 elderly and vulnerable people in Reading and their carers are to be asked what they think about cuts to care services.


Their views on being charged the full cost of care in the home if they have the money to pay will also be sought."

Read full article here.

CBC News - N.L. Zamboni study enrolling MS patients

From CBC News:
Newfoundland and Labrador researchers are enrolling multiple sclerosis patients in an observational study of a controversial treatment for the disease.

Health ministers are under intense pressure from patients to accelerate research testing a theory that abnormal blood drainage from the brain plays a role in multiple sclerosis and that angioplasty on neck veins might help treat the disease. (Pablo Martinez Monsivais/Associated Press)

The provincial government promised in September to spend $320,000 on the study.  Read full article here.

MS sufferer builds a new career after leaving the RAF

Mike Laver
From the BBC:

A former RAF helicopter pilot from Canford Magna set up his own furniture making-business at home after being diagnosed with Multiple Sclerosis (MS).
A great story - read the full article here.

Wednesday, 24 November 2010

People with MS to benefit from review of Work Capability Assessment

From the MS Society:

An independent review of the Work Capability Assessment (WCA), the main assessment for Employment and Support Allowance, calls for extensive reforms to make it fairer and more effective.  For more details click here.

Fitness-to-work tests to be reformed after criticism

From the BBC:
Tests determining whether people are fit to work are to be reformed to offer more support and to take greater account of mental health conditions.  Read full article here.

Tuesday, 23 November 2010

Facebook!


Don't forget you can join BMSTC on Facebook!

Follow the link and click on "Like" at the top of the page to receive our newsfeeds.  Feel free to post up your own news to share with others or comment on posts :)  Go to our page click here

Nancy's Glass Jewellery Party!

Thursday 9th December 2010 any time between 3pm & 9pm. Woodley, Reading.

For sale pendants, earrings, rings, bracelets, cuff-links plus other glass items for the home – all designed by me making ideal and unique Christmas presents.

For every sale I will be donating 15% to the Berkshire Multiple Sclerosis Therapy Centre who are a local charity helping people whose lives have been touched by this illness

There is a glass of mulled wine or orange juice plus mince pies in the kiln!

I do hope you can make it.

Nancy

Call the Centre on 0118 901 6000 or email pippa@bmstc.org  for further details.

4 Days left to Vote for BMSTC!

‎4 Days left to vote for BMSTC!! 1st place is £3,000, and 2nd and 3rd place is £1,000. Visit the link below, type in our postcode RG30 2JP then select the Reading Market place branch and you will see our details! Thanks for your help from all at the Reading MS Therapy Centre :)


To vote click visit: https://communityfund.natwest.com/Vote

Healthcare listens to social media

From the MS Trust:
Online chatter is a valuable source of information about patients' symptoms and the effectiveness of drugs and other treatments.


Patients often reveal more details about their medical conditions in discussions on social networks, blogs, and other online forums than they share with their doctors. They talk about their experience with illness and the medications they're taking in more detail. They bring up issues they don't realize are relevant to their treatment or that they're too embarrassed to share face to face.  For more click here.

Monday, 22 November 2010

Reading Station Closure: Christmas 2010 works -

Whether you pass through on a long distance journey, or your travel plans depend on going to or from Reading itself, changes to services will affect you.

For information on rail and road closures please click here.

Discussion of benefits vs risks of surgical intervention for patients with multiple sclerosis

From the MS Trust:
Paolo Zamboni, MD, professor of surgery at the University of Ferrara (Ferrara, Italy), was among the 430 presenters at the 37th annual VEITHsymposium held at the Hilton New York.


In his November 18th discussion of multiple sclerosis patients who are experiencing decreased blood flow as a result of narrowing of specific veins of the head and thorax, Dr Zamboni evaluated the risks of surgical intervention as opposed to the possible rewards. His summary was based on two recent pilot studies.  Read more here.

Death of MS patient fuels debate over new treatment

Multiple sclerosis patient Mahir Mostic, shown with his girlfriend, Bedrana Jelin - Multiple sclerosis patient Mahir Mostic, shown with his girlfriend, Bedrana Jelin

From Saturday's Globe and Mail

The death of the first Canadian after a controversial multiple sclerosis treatment abroad has deepened the chasm between doctors and patients: Physicians are urging more caution than ever, and people with MS are demanding with increased fervour that doctors set aside their reservations and perform the operation in Canada. For more click here.

Brain scientists battling to preserve our sanity from MS, Alzheimer's and Parkinson's

MRI, PET and CT scans of the brains of people affected by (clockwise from top left): Alcoholism, marijuana use, multiple sclerosis, cocaine use, Parkinson's disease, Alzehemier's disease


From the Mail Online:

The greatest threat to humanity is all in our minds - Parkinson's, multiple sclerosis and Alzheimer's affect millions, while one in six of us will die with dementia. Andrew Preston put squeamishness aside to observe the brain scientists who are on one of civilisation's most ambitious quests: to prolong life itself.

Read article here.

Friday, 19 November 2010

Collette Waller: 'Without MS, there wouldn't be all these poems'

guardian.co.uk home

From the Guardian:

Collette Waller's powerful poetry – bitter and humble, funny and furious, savage and insightful – records the reality of her life with multiple sclerosis.  Read article here.

JLS Star Ortise Williams: "I cared for mum as a kid..JLS is my way of improving our lives

Oritse and mum at Jazz Cafe

From the Mirror:

When JLS star Oritse Williams was 12, he should have been out riding his bike, kicking a ball or rehearsing the dance moves that would one day turn him into the idol of millions.

Read full article here.

CCSVI in Focus at ECTRIMS: New Data but Still Little Clarity

From Medscape Today:
November 17, 2010 (Göteborg, Sweden) — New data on the possible link between chronic cerebrospinal venous insufficiency (CCSVI) and multiple sclerosis (MS) have done little to clarify the relationship between these conditions, providing evidence both for and against the controversial hypothesis.  Read full article here.

MS woman's op plight on TV special


From the Highland News:
AN Inverness woman is set to become a star of the small screen after TV researchers spotted a Highland News Group story about her fight for better treatment for Multiple Sclerosis (MS) patients.  Read article here.

Thursday, 18 November 2010

Charities and social networking

Interesting article on the BBC website on how social media is being used by charities:
"Charitable fund-raising has always been a sociable affair - from lavish society events to "bring and buy" sales at the local school. But has the social media revolution of the last five years transformed fund-raising - and more importantly, has it made us more generous?"  

Read article here.

Reform of adult social care services

From the MS Trust:
The government has published its vision for the reform of adult social care services A Vision for Adult Social Care: Capable Communities and Active Citizens. The aim is to devolve power from central government with councils providing personal budgets, preferably as direct payments, to everyone who is eligible by 2013.   Read fulll article here.

UK's hidden army of young carers

From the MS Trust:
The BBC has today (Tuesday) published a survey which reveals there are about 700,000 young people (under 18s) in the UK caring for family members, about four times as many as previously estimated from a 2001 census.   Read full article here.

What new plans for social care in England mean to people with MS

From the MS Society:

Read the MS Society "Good news, areas of concern and what we're doing"
here!

Wednesday, 17 November 2010

Don't forget the BMSTC webshop!

Don't forget the BMSTC Webshop for all of your online shopping needs! A convenient way to shop, no extra cost to you and you help to raise funds for BMSTC all at the same time, it couldn't be easier :)


Click link to shop now! http://buy.at/bmstc

London Marathon - 2 Gold Places left!

Can you help us spread the news please? Anyone fancy running or know someone who would like to run the 2011 London Marathon? We have 2 Gold Bold places left available! First come first served - they are like gold dust! If you're interested please call jackie in 0118 901 6000 or email jackie@bmstc.org

Pop in to see our Debenhams Collectors!

If you are in Reading this week why not pop into Debenhams at the Oracle and visit our volunteer collectors and packers!! They will be there for the week and I'm sure would appreciated a friendly hello!! They do a fantastic job not only raising money for the Centre but also awareness of our work :)

Tuesday, 16 November 2010

BBC World Service - 16 year old Sarah Thomas looks after her mother who has MS

From the BBC:
BBC World service 16th November Sixteen year old Sarah Thomas looks after her mother who has Multiple Sclerosis. Her father has serious arthritis and other disabling conditions so is not able to help around the house. As she is an only child, Sarah has taken on the full responsibility of caring for her mum. Sarah recently went to meet the British Prime Minister David Cameron to raise awareness of the growing number of children in her position.

For more click here:




.

Greater "choice" for social care

From the BBC:

Ministers will urge councils to ensure everyone receiving care gets a personal budget by 2013.  

Read article here.

Young carers "deserve more help"

From the BBC:
Young carers do so much, it's good to see some media attention on this subject and for carers in general. The Children's Minister for England, Sarah Teather, said the research "shows the reality of what is really going on with young carers"."It is shocking to see that they don't get the support they need or the recognition they deserve," she said, adding that the government is to launch a strategy for carers later this year.

Read more here.

Just Giving!

If you are wanting to raise sponsorship or donations for the MS Therapy Centre then Just Giving provide an excellent solution for online fundraising :)

Click here for more.

Please vote for us if you haven't already!!

‎10 days left to go! Please vote for BMSTC to recieve a Natwest Community Fund Award!! Follow the link below, type our postcode RG30 2JP, if you select Reading Market Place you will see us appear with 2 other charities, click on vote for BMSTC and complete your contact details...Simples!! Please ask your friends and family to do the same!! Thanks :)

https://communityfund.natwest.com/Vote

Monday, 15 November 2010

Self Care Week 15th November

Monday 15th November sees the start of Self Care Week. As winter approaches, NHS Berkshire West has a number of initiatives to help local people, especially those with long term conditions, to keep well and out of hospital.

For more info click here.

Postal Scam - be careful!

Can you circulate this around especially as Xmas is fast approaching - it has been confirmed by Royal Mail. The Trading Standards Office are making people aware of the following scam:
A card is posted through your door from a company called PDS (Parcel Delivery Service) suggesting that they were unable to deliver a parcel and that you need to contact them on 0906 6611911 (a Premium rate number).

DO NOT call this number, as this is a mail scam originating from Belize.

If you call the number and you start to hear a recorded message you will already have been billed £315 for the phone call.

If you do receive a card with these details, then please contact Royal Mail Fraud on 020 7239 6655.

For more information, see the Crime Stoppers website:
http://www.crimestoppers-uk.org/crime-prevention/helping-prevent-crime/scams/postal-delivery-scam

Christmas Fayre Success!

We had a great time at the Christmas Fayre on Saturday, Sir John Madejski officially opened the event and stayed for over an hour chatting to the crowds. The Fayre raised over a record £2K and Sir John has agreed to be one of ourPatrons!!

All this was made possible by the efforts of our Fundraising Link Group, in particular Sue Smith who was responsible for inviting Sir John along - so a huge... vote of thanks to all of them.

Thanks also to everyone who came along and supported the event! :))

Special Shopping Evening in Reading - Monday 6th December 2010

From Reading Borough Council:
Special shopping evening for the elderly and disabled in Reading on Monday 6th, between 6pm - 8pm December 2010.

Free parking and hassle free Christmas shopping. Spaces are issued on a first come first served basis. For more informtion click here.

Read the latest MSRC News

From the MSRC
MSRC News - interesting read including: Multiple Sclerosis in Iran: A Demographic Study of 8,000 Patients, MS patients warn of complications after CCSVI treatment, Disability status scale predicts progression in MS.....


Click here for more.

Duncan Smith unveils details of welfare 'contract'

From the BBC:
A major shake-up in the welfare system will benefit all those who "play by the rules", Work and Pensions Secretary Iain Duncan Smith has said.  Watch here.

Plans to overhaul benefits may severely impact people with MS.

From the MS Society:
Yesterday's benefits shake-up promises to simplify the benefits system with a new universal credit. But it also introduces a harsh new regime of sanctions for employment support allowance (ESA), and limits ESA support to just one year for many people.  Read full article here.

MS Trust supports MS specialist posts under threat

From the MS Trust:
In excess of 300 health professionals gathered for the MS Trust annual conference earlier this week, to learn about new research and management strategies for MS. The delegates represented 73% of the MS specialist nurses from across the UK and there were also 52 specialist therapists in attendance.  Read full article here.





Wednesday, 10 November 2010

Please vote for BMSTC!

We are one of the three local charities nominated to recieve a Natwest Community Award!  Please vote for us!   Follow the link below, type our postcode RG30 2JP, if you select Reading Market Place you will see us appear with 2 other charities, click on vote for BMSTC and complete your contact details...Simples!! Please ask your friends and family to do the same!! Thanks :)

To vote Click here:

CTV News interview with Dr Sandy McDonald broadcast on the 9th November 2010

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Tuesday, 9 November 2010

Pride of Britain award for Ryan

Source The Scotsman:
A GLASGOW teenager who set up a multiple sclerosis charity after his mother was diagnosed with the condition is among the Pride of Britain winners announced yesterday.  Read article here.

Survey of PCTs shows access to Sativex limited

From the MS Trust
A survey conducted by financial analysts, Nomoura Code, suggests that many local funding bodies are not recommending Sativex as a treatment for spasticity in multiple sclerosis with many viewing it as low priority.  Read more here.

Monday, 8 November 2010

Know anyone who wants to run the London Marathon 2011?

Anyone want to run, or know someone who would like to run, the 2011 London Marathon on behalf of BMSTC? We have a couple of Gold Bond places left, but please hurry, they go like hot cakes!! Please contact jackie@bmsc.org or call 0118 901 6000 :)

CCSVI Conference, 29th & 30th October 2010

Information on the CCSVI conference in Glasgow.

For more click here.

BG-12 shows promise in relapsing remitting MS

From the MS Trust:
BG-12 is an experimental new drug treatment for people with relapsing remitting multiple sclerosis (MS) that is taken orally (by mouth). The mechanism of action is not fully understood, but preclinical studies have suggested that BG-12 may have complex neuroprotective and anti-inflammatory effects.  Read more here.

Glia: The new frontier in brain science

astrocytesFrom Scientific American:

The current issue of the journal Science (November 5) marks a turning point in research on the brain. This event is fascinating not only for the wealth of new information about how the brain functions and how it fails in mental and neurological illness, but equally as a rare display of a field of science changing course. Such transitions are the lore of scientific history, but rarely do we have the opportunity to witness such pivotal moments in real time.

Read full article here.

Friday, 5 November 2010

Christmas Fayre - 13th November 1.00 - 3.30 pm

Don't forget our Christmas Fayre held at the Centre on Saturday 13th November 1.00 - 3.30 pm. We are delighted that Sir John Madejski will be performing the opening ceremony! There will be lots of stalls with all sorts of things to buy and delicious cakes to eat in or take away. Tea, coffee and cold drinks will also ...be available and of course Santa will be there in his grotto!

MS Trust: Tell us what you think! Complete our survey and win £25 M&S voucher!

From the MS Trust:
Your views and experiences are very important to us, so we have put together a survey to find out a bit more about you and your involvement with the MS Trust.

 For more click here.