Thursday, 24 December 2009
We hope (weather pending!) to be open for business as usual on 4th December.
I hope you have a wonderful Christmas and New Year!
Wednesday, 23 December 2009
We hope to be open as planned on Christmas Eve but will review the situation in the morning. Fingers crossed for a bit thaw between now and then!
Once again please accept our apologies.
Tuesday, 22 December 2009
Thursday, 17 December 2009
Functional Electrical Stimulation (FES) in a non-invasive device that can help some people with MS to walk. The MS Society's brand new campaigns guide will help you to access FES, what to do if you are refused NHS funding for FES and how to get loud!
BMSTC offers a FES clinic here at the Centre, contact email@example.com if you would like to find out more information.
Wednesday, 16 December 2009
This website is your worldwide gateway to Low Dose Naltrexone information, resources and events. LDN Aware is a volunteer group devoted entirely to spreading knowledge and raising public awareness about LDN as a treatment for auto-immune disease, cancer and HIV/AIDS.
The Teenager whose mother inspired him to campaign on multiple sclerosis
Ryan McLaughlin is just 14 and his mother Kirsten has multiple sclerosis. A link has been suggested between the disease and Vitamin D deficiency. Ryan took up the cause, calling on the Scottish government to raise awareness on the issue. Now, because of Ryan’s efforts, all pregnant women in the country are to be told about the importance of taking vitamin D supplements. Jenni speaks to Ryan McLaughlin, his mother Kirsten, and to discuss the links between MS and vitamin D, George Ebers, Professor of Clinical Neurology and the University of Oxford.
There are many, many factual errors being published in the press and bandied about by MS societies, doctors and even on well-intentioned petitions. It's important to separate fact from fiction. Here are a few things that are essential to understand-
FICTION 1- "The Liberation Procedure is a cure for MS and MS is not autoimmune"-
FACT-Dr. Zamboni has never used the word "cure." MS is an ongoing assault on brain tissue due to reflux, and some of the damage done to the brain may be permanent. Just as people have variable recoveries due to stroke, recovery from venous congestion and reflux will vary. Dr. Zamboni has never said MS is "not autoimmune." Dr. Zamboni believes that CCSVI may be the cause of the MS process. He says that the immune system is obviously involved...but he believes the immune reaction is secondary to the venous congestion.
FICTION 2- "Venous procedures are dangerous. Several people have died from the Liberation procedure!"
FACT- The only complications from the Liberation procedure (venous angioplasty and ballooning) have been headache and bleeding from the small incision at the groin.
There have been complications from venous stenting, including nerve damage (several cases) and stent migration (one case), but NO ONE has died from this procedure. A friend of many of us had a hemorrhagic stroke after having a stent procedure, but her death was not related to the venous intervention....it happened on the arterial side. Her family, her doctors and the hospital that treated her after the stroke maintain that her tragic death was not due to her stent intervention.
FICTION 3- "Venous congestion is caused by MS"
FACT- We know how venous congestion works, because it happens in other parts of the body. Chronic venous insufficiency in the legs begins with venous stenosis and reflux, leading to pain, swelling, and venous ulcers. Chronic venous congestion of the liver (Budd Chiari disease) begins as venous stenosis and leads to liver damage. When veins are blocked and blood cannot return to the heart, damage to the surrounding tissue occurs, not the other way around.
FICTION 4- "Dr. Zamboni's studies are not scientific. They are not "blinded."
FACT- Dr. Zamboni's first study was blinded. He tested hundreds of normal controls, other neurological diseases, and MS patients, and the doppler technicians did not know who was whom. After the patient results were "unblinded"- Dr. Zamboni found CCSVI only in MS patients. Dr. Zamboni only gave the Liberation procedure to 65 MS patients....because THEY WERE THE ONLY ONES WITH VENOUS STENOSIS. Why give normal controls a procedure they do not need? Why "pretend" to give people with malformed and closed veins a procedure that they do need. The placebo argument makes no sense....MS patients stayed relapse and progression free (as verified on MRI) as long as their veins remained open and unstenosied. Remaining relapse and progression free is not placebo affect.
"An Australian man who was confined to a wheelchair by multiple sclerosis has made a remarkable recovery after receiving a groundbreaking stem cell treatment.
Ben Leahy, 20, was diagnosed with the disease in 2008 and lost the ability to stand within a few months.
However, a new procedure to combat the disease has helped him regain his health and he is now walking again."
Tuesday, 15 December 2009
Click on the link to retrieve your card.
Friday, 11 December 2009
UPDATE: Research into Blood Flow in the Brain and Venous Insufficiency, or CCSVI, in Multiple Sclerosis
Wednesday, 9 December 2009
See their website at www.remap.org.uk
All the glass jewellery is fused and original work using dichroic and bullseye glass. There will be pendants, rings, earrings, cufflinks, brooches and bracelets. Also on sale will be handmade glass dishes and coasters.
From the sale Nancy has agreed to donate 15% to the centre. She has recently donated £45 from a party she held at home last month. If any member wishes to have a party at home Nancy will be happy to do this. She also does workshops from home and these cost £25 for two hours - 3 items of jewellery can be made. Also tokens can be bought for £25 which make wonderful Christmas or Birthday presents for someone who would like to do a workshop.
Nancy can be contacted on 0118 9674272 or 07906930266 or email firstname.lastname@example.org
Monday, 7 December 2009
LDN (low dose naltrexone) is such a big light in the miserable life of many forgotten and shoved aside patients with autoimmune diseases. Something has to happen
- to make people more aware of this
- to it being offered as a first and safe line of treatment
- to make it easy for (sometimes weak and feeble) patients to get hold of this cheap medication, that could change their life, their outlook, their social surrounds.
Find out about the outcome of these petitions on http://www.LDNNow.com, read the articles, watch the videos and most of all, keep helping with spreading the word about LDN.
Thank you very much
"Wokingham Borough Council is currently working in partnership with people with disabilities and/or long term conditions and their carers to look at the way in which day opportunities will be made available in the future. Self-Directed Support will be a major influence on how services developing the future.
A steering group has been formed to carry out the consultation and put forward options for future services to the Council Executive in April 2010.
Current services are a mixture of traditional day services provided by the Council, those commissioned from Voluntary Sector Providers and other Community Services which people access through their own initiative. There has been some limited development and usage of mainstream universal services such as Leisure Centre facilities.
I am writing to invite you/your organisation to attend and event to contribute to the consultation.
The event will be held in the David Hicks Room, Wokingham Borough Council, Civic Offices, Shute End, Wokingham, RG40 1BN on Friday 18th December 1.30 - 4.30 pm. If you would like to attend please contact the Day Opportunities Steering Group on 0118 974 6000."
Thursday, 3 December 2009