Friday, 30 January 2009

Help the MS Society Campaign for Access to NHS Approved Drugs


The NHS system for ensuring people get access to effective drugs is failing people with MS. Tysabri (also known as Natalizumab) is the first ever MS drug to win approval from the National Institute for Health and Clinical Excellence (NICE). This means that as a licensed drug for people with highly relapsing remitting MS, Tysabri should be available because it is both clinically and cost effective for the NHS to provide.


As a result, the MS Society is launching a campaign to improve equity of access to Tysabri across the country. We want people with MS to have the freedom to choose between all available treatments. The MS Society shall be working with Primary Care Trusts to ensure NICE decisions get implemented, as we have done already in Wakefield.


To offer your support to this campaign, please visit http://www.mssociety.org.uk/get_involved/campaigning/join_campaign.html

MS Stem-Cell Treatment "Success" BBC News


Stem-cell transplants may control and even reverse multiple sclerosis symptoms if done early enough, a small study has suggested.

Not one of 21 adults with relapsing-remitting MS who had stem cells transplanted from their own bone marrow deteriorated over three years.

And 81% improved by at least one point on a scale of neurological disability, The Lancet Neurology reported.

Further tests are now planned, and a UK expert called the work "encouraging".
Stem-cell transplants may control and even reverse multiple sclerosis symptoms if done early enough, a small study has suggested.

Not one of 21 adults with relapsing-remitting MS who had stem cells transplanted from their own bone marrow deteriorated over three years.

And 81% improved by at least one point on a scale of neurological disability, The Lancet Neurology reported.

Further tests are now planned, and a UK expert called the work "encouraging".


See the BBC Website for more details at http://news.bbc.co.uk/1/hi/health/7858559.stm

Thursday, 29 January 2009

Blue Badge Sat Nav


BB Nav is the first sat nav system that has been designed specifically to support disabled drivers and their carers. Key features include:
  • Navigate directly to blue badge parking bays
  • Easily find disabled accessible car parks
  • Mapping showing council zone parking rules
  • Over 6000 points of interest with disabled access including accessible accommodation
  • Seven digit postcode routing
  • Dedicated helpline support

Please call 020 7952 0456/9 for more information or to place an order.

http://shop.thepieguide.com/index.php?main_page=product_info&products_id=45

Wednesday, 28 January 2009

Independent Living Through Telecare Solutions

A range of non intrusive telecare sensors offer a comprehensive way of managing the risks to a person’s health and home environment 24 hours a day, 365 days a year, enabling people to live independently for as long as possible.

Designed to work with both individual Lifeline home units and in sheltered settings, the range of sensors can be flexibly applied according to the needs of the service user. Help at the touch of a button.

If you live in the Reading area you can contact the Reading Borough Council Response and Assessment Team on 0118 955 3621. Alternatively speak to you your Care Manager.

More information can be found http://www.telecare.org.uk/


Friday, 23 January 2009

MS Decisions Website Relaunched Today


If you are making a decision about Disease Modifying Drug treatment of your Multiple Sclerosis, this web site will be of value to you.


Wednesday, 21 January 2009

Enabled by Design


Adaptation + Modern Design = Enabled by Design
Enabled by Design supports anyone looking to make adjustments to their lives through the use of assistive equipment, be it as a result of disability, injury or personal identified need. We aim to make independent living more accessible through the use of clever modern design.
Enabled by Design bridges the communication gap between users of assistive equipment and designers, encouraging discussion and collaboration to produce both practical and stylish gadgets. The site provides an opportunity for people to air their views, talk through ideas and hopefully find some answers! It’s all about giving people the chance to adapt their lives in a way that fits around their individual needs.

See http://enabledbydesign.org/ for further information.

Wednesday, 14 January 2009

Photocard Driving Licence - Not A Lot of People Know This!

Did you know that your photo on your Photocard Driving Licence is only valid for 10 years from the issue date? I didn't! It is my understanding that your driving licence is valid until you reach the age of 70, but it will cost £17.50 to renew your photograph. See 4a on your Photocard to check the expiry date. Further details can be found at http://www.direct.gov.uk/en/Motoring/DriverLicensing/DG_068315

Thursday, 8 January 2009

Pain Management Survey

Opinion Health, a UK healthcare market research firm, is looking for people in the UK with either multiple sclerosis or Parkinson’s disease to complete a short survey on their management of pain.
The survey, which is online, aims to learn more about the pain associated with either of these two illnesses, and how effectively people are managing it with current (or alternative) therapies.
The survey will probably take about 5-10 minutes to complete. If you have either of these conditions, and complete the survey, a reward of £5 for each individual participation will be donated to a patient group of your choice (at the end of the survey, you will be asked to specify which patient group you would like us to send a cheque).
All responses will be confidential, and all information given will be studied in aggregated form only. The final results will be used for a confidential discussion among healthcare professionals.
To enter this short survey, please click on this link [ie, place your mouse on the link, hold down the Control button, and left-click your mouse]:
http://survey.opinionhealth.co.uk/uc/pain

If you have any further questions about the survey, please contact Opinion Health at
info@opinionhealth.co.uk (or, alternatively, you can call us on 020-7486-6700).

Finally, please note that the survey is open to the first 35 people with MS who reply, and the first 5 people with Parkinson’s.

Thank you,
Michele Poliziani,
Research Director,
Opinion Health.

Wednesday, 7 January 2009

Interested in Becoming an Oxygen Operator?

We are looking for some more volunteers to help us provide our Oxygen Therapy service. In particular we are in need of a volunteer for Wednesday mornings and/or a Tuesday early afternoon.
Full training to nationally recognised standards provided alongside ongoing support and annual refresher training. If you are interested and have some time to spare then please email pippa@bmstc.org or give me a call on 0118 901 6000 for more information.