Thursday, 24 December 2009

Yes you've guessed it! Closed again 24th December!

Apologies for yet another day of cancellations! Although the main roads are clear the side roads and pavements are very treacherous! Today has been the worst on foot so far!

We hope (weather pending!) to be open for business as usual on 4th December.

I hope you have a wonderful Christmas and New Year!

Pip

Wednesday, 23 December 2009

Centre Closed Again!! - Wednesday 23rd December 2009

Our apologies but the conditions have not changed since yesterday, the Centre will be closed all day today.

We hope to be open as planned on Christmas Eve but will review the situation in the morning. Fingers crossed for a bit thaw between now and then!

Once again please accept our apologies.

Pip

Tuesday, 22 December 2009

Centre Closed Tuesday 22nd December

The Centre will be closed all day and evening of Tuesday 22nd December due to the bad weather conditions.

Apologies for any inconvenience caused.

Best wishes

Pippa

Thursday, 17 December 2009

How to Campaign to access FES


Published on the MS Society website.


Functional Electrical Stimulation (FES) in a non-invasive device that can help some people with MS to walk. The MS Society's brand new campaigns guide will help you to access FES, what to do if you are refused NHS funding for FES and how to get loud!

http://www.mssociety.org.uk/get_involved/policy_campaigns/campaigns_network/campaigning_guides/fes_guide.html

BMSTC offers a FES clinic here at the Centre, contact ruth@bmstc.org if you would like to find out more information.

Wednesday, 16 December 2009

New! LDN Aware Website


This website is your worldwide gateway to Low Dose Naltrexone information, resources and events. LDN Aware is a volunteer group devoted entirely to spreading knowledge and raising public awareness about LDN as a treatment for auto-immune disease, cancer and HIV/AIDS.

http://www.ldnaware.org/

MS & Vitamin D

Link to Radio 4 Woman's Hour Programme:


The Teenager whose mother inspired him to campaign on multiple sclerosis
Ryan McLaughlin is just 14 and his mother Kirsten has multiple sclerosis. A link has been suggested between the disease and Vitamin D deficiency. Ryan took up the cause, calling on the Scottish government to raise awareness on the issue. Now, because of Ryan’s efforts, all pregnant women in the country are to be told about the importance of taking vitamin D supplements. Jenni speaks to Ryan McLaughlin, his mother Kirsten, and to discuss the links between MS and vitamin D, George Ebers, Professor of Clinical Neurology and the University of Oxford.



http://www.bbc.co.uk/radio4/womanshour/03/2009_49_fri.shtml

CCSVI - Latest Broadcast on CTV News

CTV- new research at University of British Columbia announced:

watch.ctv.ca

CCSVI - Fact or Fiction

Taken from the CCSVI Facebook group published on the 14th December:



There are many, many factual errors being published in the press and bandied about by MS societies, doctors and even on well-intentioned petitions. It's important to separate fact from fiction. Here are a few things that are essential to understand-

FICTION 1- "The Liberation Procedure is a cure for MS and MS is not autoimmune"-

FACT-Dr. Zamboni has never used the word "cure." MS is an ongoing assault on brain tissue due to reflux, and some of the damage done to the brain may be permanent. Just as people have variable recoveries due to stroke, recovery from venous congestion and reflux will vary. Dr. Zamboni has never said MS is "not autoimmune." Dr. Zamboni believes that CCSVI may be the cause of the MS process. He says that the immune system is obviously involved...but he believes the immune reaction is secondary to the venous congestion.

FICTION 2- "Venous procedures are dangerous. Several people have died from the Liberation procedure!"

FACT- The only complications from the Liberation procedure (venous angioplasty and ballooning) have been headache and bleeding from the small incision at the groin.

There have been complications from venous stenting, including nerve damage (several cases) and stent migration (one case), but NO ONE has died from this procedure. A friend of many of us had a hemorrhagic stroke after having a stent procedure, but her death was not related to the venous intervention....it happened on the arterial side. Her family, her doctors and the hospital that treated her after the stroke maintain that her tragic death was not due to her stent intervention.

FICTION 3- "Venous congestion is caused by MS"

FACT- We know how venous congestion works, because it happens in other parts of the body. Chronic venous insufficiency in the legs begins with venous stenosis and reflux, leading to pain, swelling, and venous ulcers. Chronic venous congestion of the liver (Budd Chiari disease) begins as venous stenosis and leads to liver damage. When veins are blocked and blood cannot return to the heart, damage to the surrounding tissue occurs, not the other way around.

FICTION 4- "Dr. Zamboni's studies are not scientific. They are not "blinded."

FACT- Dr. Zamboni's first study was blinded. He tested hundreds of normal controls, other neurological diseases, and MS patients, and the doppler technicians did not know who was whom. After the patient results were "unblinded"- Dr. Zamboni found CCSVI only in MS patients. Dr. Zamboni only gave the Liberation procedure to 65 MS patients....because THEY WERE THE ONLY ONES WITH VENOUS STENOSIS. Why give normal controls a procedure they do not need? Why "pretend" to give people with malformed and closed veins a procedure that they do need. The placebo argument makes no sense....MS patients stayed relapse and progression free (as verified on MRI) as long as their veins remained open and unstenosied. Remaining relapse and progression free is not placebo affect.

http://www.facebook.com/notes/ccsvi-in-multiple-sclerosis/ccsvi-fact-or-fiction/205971757210

MS sufferer walks after stem cell treatment

From the MS Trust Website:

"An Australian man who was confined to a wheelchair by multiple sclerosis has made a remarkable recovery after receiving a groundbreaking stem cell treatment.


Ben Leahy, 20, was diagnosed with the disease in 2008 and lost the ability to stand within a few months.

However, a new procedure to combat the disease has helped him regain his health and he is now walking again."


http://www.mstrust.org.uk/news/recentstories/article.jsp?id=3400

Tuesday, 15 December 2009

Christmas Card from BMSTC!

Happy Christmas to one and all, and best wishes for a peaceful and happy New Year!

Click on the link to retrieve your card.

http://www.jacquielawson.com/viewcard.asp?code=2003938168391&source=jl999

MS and Swine Flu - Latest Information

Latest information on MS and Swine Flu - published on the MS Trust website on the 14th December 2009.

Wednesday, 9 December 2009

Can you help us with a comment please?

Each year we produce various publications and fundraising applications to promote the work of the Centre. It comes over extremely well if we can include comments from our service users about how you benefit from the Centre. E.g. in our Annual Report http://www.bmstc.org/About-Us/Annual-Report.aspx

If you have a spare moment, I wonder if you could email me pippa@bmstc.org with a comment about a particular therapy, social group or just a general comment about how you benefit from the centre. We keep comments anonymous, but they do really help to get the message across to people outside of our organisation about what the Centre provides.
If you prefer, you can jot something down and hand in at reception or post in the Suggestions Box in the reception area.
Thanks in advance for your help! Pip :0)x

Remap - Custom Made Equipment for People with Disabilities

Remap is a very special charity, working through a nationwide network of dedicated volunteers. These inspiring people use their ingenuity and skills to help people with disabilities to achieve much-desired independence in some aspect of their lives, or to enjoy leisure opportunities previously closed to them.

See their website at www.remap.org.uk

Glass Jewellery for Sale - Friday 18th December

BMSTC have invited along to the annual Christmas Party on 18th December 2009 Nancy Boyd who is a member of the centre and will be showing and selling her Glass Jewellery.

All the glass jewellery is fused and original work using dichroic and bullseye glass. There will be pendants, rings, earrings, cufflinks, brooches and bracelets. Also on sale will be handmade glass dishes and coasters.

From the sale Nancy has agreed to donate 15% to the centre. She has recently donated £45 from a party she held at home last month. If any member wishes to have a party at home Nancy will be happy to do this. She also does workshops from home and these cost £25 for two hours -
3 items of jewellery can be made. Also tokens can be bought for £25 which make wonderful Christmas or Birthday presents for someone who would like to do a workshop.

Nancy can be contacted on 0118 9674272 or 07906930266 or email nancyboyd1@yahoo.co.uk

Monday, 7 December 2009

LDN Update

Well, well, well, what a week it has been. The petitions are in, the UK one was delivered by Dr.Chris to 10 Downing Street on Tuesday the 1st of December. It had 13026 signatures in the end and hopefully will trigger some government action. The Scottish petition had finished around the same time, but Scotland has a different system. The petitioner, Bob Thomson from LDNNow Scotland, had been invited to give a 3 minute presentation on LDN. Then he and two fellow campaigners were questioned about LDN, its effectiveness and availability. The petition and petitioners were very well received by the petitions committee and the hope is high, that the clever questions that were being asked will bring some fruitful furtherance of the LDN cause.

LDN (low dose naltrexone) is such a big light in the miserable life of many forgotten and shoved aside patients with autoimmune diseases. Something has to happen

  • to make people more aware of this
  • to it being offered as a first and safe line of treatment

  • to make it easy for (sometimes weak and feeble) patients to get hold of this cheap medication, that could change their life, their outlook, their social surrounds.

Find out about the outcome of these petitions on http://www.LDNNow.com, read the articles, watch the videos and most of all, keep helping with spreading the word about LDN.


Thank you very much


Yours sincerely


Silvia Lane

Wings on Wheels


You can tell it's nearly Christmas as we're already thinking about summer holidays!!!


Recommended by one of our members - Holidays for people with special needs and the less mobile, their carers, friends and relatives:

Wokingham Borough Council Day Opportunities Consultation

Invitation to Consultation:
"Wokingham Borough Council is currently working in partnership with people with disabilities and/or long term conditions and their carers to look at the way in which day opportunities will be made available in the future. Self-Directed Support will be a major influence on how services developing the future.

A steering group has been formed to carry out the consultation and put forward options for future services to the Council Executive in April 2010.

Current services are a mixture of traditional day services provided by the Council, those commissioned from Voluntary Sector Providers and other Community Services which people access through their own initiative. There has been some limited development and usage of mainstream universal services such as Leisure Centre facilities.

I am writing to invite you/your organisation to attend and event to contribute to the consultation.

The event will be held in the David Hicks Room, Wokingham Borough Council, Civic Offices, Shute End, Wokingham, RG40 1BN on Friday 18th December 1.30 - 4.30 pm. If you would like to attend please contact the Day Opportunities Steering Group on 0118 974 6000."

Thursday, 3 December 2009

BMSTC Christmas Closing and Opening Dates:

The Centre will be closed from 1.00 p.m on Christmas Eve and re-open in the New Year at 9.00 am on Monday 4th January.

Please do double check your appointment dates with your therapist!

There will be limited Oxygen Therapy available over the week that the Centre is closed. Please contact reception on 0118 901 6000 for further details or to make a booking.
Best wishes for a very Happy Christmas and a Peaceful 2010 from everyone at the Centre xxx

MS Society Christmas E-Card

Support the MS Society by using their Christmas E-Card Scheme!

http://beatms.mssociety.org.uk/NetCommunity/Page.aspx?pid=1071

Tuesday, 1 December 2009

Christmas Fayre Success!

The Members Fundraising Link Group should be very proud of themselves for organising such a terrific Christmas Fayre this year raising a huge £1,669!

The Fayre was very well attended and our Patron Martin Salter MP was delighted to come and officially open the event. A huge amount of time, effort and energy goes into putting on this event. Our thanks go to everyone who organised, helped or attended the Fayre.


Please see the recent article in the Chronicle Newspaper:

Monday, 30 November 2009

Collaboration between MSNTC and the MS Society

From the National MS Therapy Centres website:

The two largest societies in the field of MS are the MS Society (with approximately 40,000 members) and the Therapy Centres who are part of MSNTC (with approximately 12,000 members). Attendees at the Open Meeting heard about recent new collaborative developments between these two charities.

In October the MS Society and MSNTC issued a statement affirming their joint wish to work together at national, regional and local levels. You can find the full MSNTC/MS Society joint statement here.

Under this new initiative, the two charities will look at the ways in which a sample of local MS Therapy Centres and MS Society branches are already working together to improve the quality and range of services available to members of both organisations. It will identify not only the 'success factors' but also those obstacles that have hindered co-operation. The aim is to define a set of criteria which will help MS Therapy Centres and MS Society Branches to improve their working relationships and provide more coordinated help for the people that both organisations exist to serve.

Reading Half Marathon 2010 - Corporate Relay Challenge

We are delighted that our Patron, Martin Salter MP will organising his own team in the Reading Half Marathon Corporate Relay Challenge on Sunday 21st March to raise funds for the Centre. This is a great local event and the Berkshire MS Therapy Centre will have lots of marshals to offer support and urge the runners on.

Why not log onto: www.readinghalfmarathon.com/race_info/corporatechallenge.htm

and join in the fun. We will provide you with a BMSTC running vests and loads of support on the day!.

Friday, 27 November 2009

This Is MS- The unbiased MS Community

I found out about this site from the November/December edition of Pathways magazine produced by the MS Resource Centre.

" This is MS is an unbiased, unaffiliated site dedicated to eradicating Multiple Sclerosis. We offer an open-minded approach to *all* potentially viable treatments, ranging from the FDA-approved disease-modifying drugs such as Copaxone to alternative treatments such as Low Dose Naltrexone."

This link features accounts of patients in California who have undergone CCSVI treatment among other treatments.

http://www.thisisms.com/forum-40.html

Multiple sclerosis 'blood blockage theory' tested

From the BBC website:

US scientists are testing a radical new theory that multiple sclerosis (MS) is caused by blockages in the veins that drain the brain.


The University of Buffalo team were intrigued by the work of Italian researcher Dr Paolo Zamboni who claims 90% of MS is caused by narrowed veins.

http://news.bbc.co.uk/1/hi/health/8374980.stm


Thursday, 26 November 2009

CCSVI - Statement from Professor Philip James & Our Medical Advisers


We have had several MS Therapy Centres asking about our view on Chronic Cerebrospinal Venous Insufficiency - CCSVI. Various articles and news clips have been published on the net. Prof James has sent an email to the author Dr Zamboni to find out more about the surgical procedure and we will keep you informed of any developments.

Please find attached a document to be circulated to your members, operators, staff etc.

Kind regards

Petra

Dr Petra Kliempt
BSc, MPH, PhD
Hon. NHS Specialist Trainer in Hyperbaric Medicine
MS-National Therapy Centres Co-ordinator

Attached from Prof James:

The recent publicity given to the work of Professor Paolo Zamboni has highlighted a growing disaffection with the concept of ‘auto’ immunity which has dominated MS research and treatment for more than half a century. Zamboni trained as a vascular surgeon specializing on problems of leg veins, which often leak as we age, allowing red blood cells into the surrounding tissues. When the red cells break down they liberate iron which causes damage to the walls of veins and the surrounding cells. Similar damage was found in the veins in the centre of the typical ‘plaques’ of multiple sclerosis as long ago as 1863. However, the use of an animal model for MS research after WW2 led to the concept of auto immunity where, it is claimed, the immune system attacks normal tissue. Despite sixty years of research there is no evidence of this and it remains just a theory. What is certain is the damage in MS involves veins and inflammation and Professor Zamboni has focused on these proven observations. He noticed, when using ultrasound scanning of the neck in a Multiple Sclerosis patient, that blood flowed the wrong way in a vein and also that the vein appeared to be constricted. After more investigations he has used the same procedure used to stretch arteries in the heart to relieve the vein constrictions. Several patients have found the procedure beneficial, greatly reducing their symptoms although stretching the veins will not affect existing scarring. There has been no indication of why the veins constrict, although increased ‘reactivity’ of blood vessels has been reported before in MS patients. Professor Zamboni’s work has highlighted the importance of the blood-brain barrier. Oxygen is responsible for the genetic control of inflammation and lack of oxygen has been shown in affected areas in MS patients by brain imaging. Neurologists are likely to remain sceptical of vein stretching until a ‘controlled’ study is done in which a sham procedure is used and compared to a group of matched patients who have the real procedure undertaken.

Philip B James MB ChB DIH PhD FFOM

Emeritus Professor of Medicine University of Dundee

Honorary Medical Adviser MS Therapy Centres



Wednesday, 25 November 2009

CCSVI in MS - Facebook Link

Chronic Cerebrospinal Venous Insufficiency.a reflux of blood in the veins from the brain and spine..has been found in MS patients tested world-wide.

See link:

http://www.facebook.com/inbox/#/pages/CCSVI-in-Multiple-Sclerosis/110796282297?ref=search&sid=1144265402.715092968..1




More about CCSVI.........

From the MS Resource Centre website: A statement of particular interest to the MS Therapy Centres providing Oxygen Therapy:

"Blood that remains in the brain too long creates a delay in deoxyginated blood leaving the head ("slowed perfusion"). This can cause hypoxia, a lack of oxygen in the brain. Plasma and iron from blood deposited in the brain tissue can also be very damaging leading to iron along with other unwelcome cells, to cross the crucial brain-blood barrier."


I've sent a communication to ask what Professor Philip James (Our specialist Oxygen Therapy Adviser) thinks about the idea. I will publish his thoughts on the blog as soon as I hear back from him.

http://www.msrc.co.uk/index.cfm?fuseaction=show&pageid=2944


Tuesday, 24 November 2009

Experimental MS Surgery Draws Canadian Interest

From the MS Trust Website (information linked to previous post dated 23rd November - CCSVI)

"The Multiple Sclerosis Society of Canada will be asking Canadian scientists to propose their own research into a procedure that has ignited the hopes of patients in Europe and North America."

http://www.mstrust.org.uk/news/recentstories/article.jsp?id=3357

MS Progress Slowed by Giving Birth, Belgian Doctors Say

From the BBC website:

"Giving birth seems to slow the progression of multiple sclerosis (MS), Belgian and Dutch researchers say."


http://news.bbc.co.uk/1/hi/health/8374009.stm

Monday, 23 November 2009

CCSVI - A Huge Breakthrough in MS?


Interesting article on the MS Society Website.

"In August, I received a message asking me what I thought about CCSVI in multiple sclerosis. I had the same reaction most of you did when you read the title of this article – “What the hell is CCSVI?” A Google search told me it stood for “chronic cerebrospinal venous insufficiency” and a PubMed search led me to a handful of papers on CCSVI, all authored by an Italian vascular researcher/surgeon named Paolo Zamboni."


http://www.mssociety.org.uk/applications/discussion/view.rm?post_id=838872&id=14320

See also CTV News video:

http://watch.ctv.ca/news/w5/the-liberation-treatme%20nt/#clip237617

Postal Scam

Royal Mail and Trading Standards Office are making people aware of a postal scam, especially with Christmas fast approaching.



Following scam:


A card is posted through your door From a company called PDS (Parcel Delivery Service) suggesting that they were unable to deliver a parcel and that you need to contact them on 0906 6611911 (a Premium rate number).


DO NOT call this number, as this is a mail scam - originating from Belize. If you call the number and you start to hear a recorded message you will already have been billed £15 for the phone call.


If you do receive a card with these details, then please contact Royal Mail Fraud on 02072396655

Monday, 16 November 2009

New Drug Therapies and Promising Research

(From the MS Trust website )

Early diagnosis of multiple sclerosis can change the lives of people living with this chronic disease of the central nervous system.


"Today, there is a huge urgency to make the diagnosis because we know that early and aggressive treatment can alter the course of the disease," says MS specialist and University of Alberta assistant clinical professor Dr Brad Stewart. "Back 15 or 20 years, diagnosis was less urgent because we had nothing to offer the patient."

http://www.mstrust.org.uk/news/recentstories/article.jsp?id=3340


I am blessed to have MS - Alistair Hignell

Interesting article on the BBC website by Alistair Hignell

http://news.bbc.co.uk/1/hi/health/8344634.stm

Hyperbaric Oxygen Treatment Trust


I thought this website might of interest to people who attend or are interested in Oxygen Therapy treatment.

Thursday, 12 November 2009

Assisted Suicide Policy Consultation - Take Action!

Have your say on assisted suicide guidelines

The Director of Public Prosecution (DPP) has issued guidelines clarifying the issues that will be taken into account when deciding whether or not to consent to the prosecution of individuals who assist someone to die, including when people have accompanied loved ones abroad for an assisted death.

These issues are now open for a public consultation period that ends on 16th December.

Why we need these guidelines

Assisted dying for terminally ill people remains a criminal offence in the UK and the decision whether to prosecute currently rests with the Director of Public Prosecutions (DPP). At present, it is not clear on what basis the DPP will decide whether or not to support a prosecution. This ambiguity places further and unnecessary pressure on those suffering from severe and terminal illnesses or conditions, and their loved ones.

Background

  • The guidelines are being prepared as a result of the prominent case of Debbie Purdy, a multiple sclerosis sufferer, who recently won her case in the UK’s highest court. The judgement required that the DPP publish clear guidance, showing when it would or would not prosecute someone for assisting someone to die.
  • This is not a change in the law; assisted dying remains illegal. However this does represent a significant, and positive change to the present situation.
  • The law at present is fundamentally flawed; it does not make a distinction between those who maliciously encourage suicide and those who compassionately accompany a loved one abroad to die in a country where assisted dying is legal.

Why your views matter

It is vital that the consultation receives an accurate and representative view on the subject of assisted dying. Most importantly, the principle that guidelines are required should be positively acknowledged.

It is really important that as many people as possible who are in favour of having clear guidelines on this issue respond to the consultation. We know that anti-choice groups will be responding to this consultation and it would be very negative should their minority view have a disproportionate influence on the outcome of this consultation.

Here’s what you can do

Please visit the Crown Prosecution website to participate in the consultation. http://www.cps.gov.uk/consultations/as_index.html

The consultation consists of nine questions listing a number of factors in favour of a prosecution and against. It gives respondents the opportunity to agree or disagree with their inclusion, weight them in accordance with priority, and offer further suggestions.

Once you have completed the consultation form, please e-mail your response to assistedsuicide.consultation@cps.gsi.gov.uk

Alternatively, send your printed and completed form to:

Assisted Suicide Policy Team

Crown Prosecution Service Headquarters - 6th floor

50 Ludgate Hill

London

EC4M 7EX

You many also be interested in this blog http://dignityindying.blogspot.com/ or their website http://www.dignityindying.org.uk/

Wednesday, 11 November 2009

Don't Forget the BMSTC Christmas Fayre, Saturday 21st November!

Come and buy your Christmas Goodies or come along and lend a hand on the day!

Christmas Party - Friday 18th December!

1.00pm to 3.00 pm at the Centre. Come celebrate and socialise with other members, staff, volunteers and Trustees!

A light buffet will be provided along with Christmas Carols performed by Wilson Road Primary School - back by popular demand!

Please bring a bottle to share some Christmas cheer!  No need to RSVP, just come along and join in the fun!  We hope to see you there!

3 Days to Go! - The Big Care Debate Closes Friday 13th November

The Big Care Debate ends this Friday, 13th November. Make sure you tell them what you think of the governments ideas and plans!

See http://careandsupport.direct.gov.uk/

Tuesday, 3 November 2009

Special Shopping Event for the Elderly and Disabled

On Monday 30th November between 6pm and 8pm there will be a special shopping event for the elderly and disabled in Reading. Free parking and assistance will be offered to those who need it.
For further information please contact Lucy Burgess at Reading Borough Council on 0118 939 0771.




Thursday, 29 October 2009

The Big Care Debate - Have Your Say!

The Government is working to create a new National Care Service for England that is fair, simple and affordable. How should it be structured and paid for?

Although it has been announced that DLA will not be affected for the under 65's, the case for over 65's is undecided. If you are interested in campaigning for over 65's please visit the Age Concern website http://www.ageconcern.org.uk/AgeConcern/quality-care-big-q.asp

Tell the government what you think of the options for reform in the Big Care Debate which ends on the 13th November.

See http://careandsupport.direct.gov.uk/

Wednesday, 28 October 2009

Updated Info on Swine Flu & MS

Latest information sheet on Swine Flu and MS avaialble from the MS Trust Website:

http://www.mstrust.org.uk/news/article.jsp?id=3308




Tuesday, 27 October 2009

Oxygen Therapy Assessment Results

Our friends at the new Merlin Project, Cornwall MS Therapy Centre have recently conducted an assessment on their patients attending for Oxygen Therapy.

The summary results are very encouraging

Wellbeing: 94% of patients indicated an improvement in wellbeing after 15 sessions.
• Fatigue: 87% of patients indicated an improvement in fatigue levels after 15 sessions.
• Sleep: 81% of patients indicated an improvement with sleep patterns after 15 sessions.
• Legs: 77% of patients indicated an improvement in their legs after 15 sessions.
• Walking: 70% of patients indicated an improvement in their ability to walk after 15 sessions.
• Balance: 66% of patients indicated an improvement in balance after 15 sessions.
• Bladder Frequency: 64% of patients indicated an improvement in bladder frequency after 15 sessions.
• Circulation: 64% of patients indicated an improvement in circulation after 15 sessions.
• Concentration: 60% of patients indicated an improvement in concentration after 15 sessions.
• Coordination: 58% of patients indicated an improvement in coordination after 15 sessions.
• Bladder Urgency: 53% of patients indicated an improvement in bladder urgency after 15 sessions.
• Arms: 51% of patients indicated an improvement in their arms after 15 sessions.
Overall, more than 50% of the patients recorded an improvement in 12 of the 20 symptoms assessed. This is not a conclusive result and carries no clinical evidence to support its findings.
For their full report an information on their centre see:

http://www.merlinproject.org.uk

Monday, 26 October 2009

Disability Living Allowance Saved!

There has been a significant victory in the campaign to save Disability Living Allowance and Attendance Allowance for the under 65's.

Secretary of State for Health, Andy Burnham MP, announced yesterday that Disability Living Allowance will not be scrapped and the money used to fund the proposed national care service.

Many thanks to all those who showed their support for this campaign by signing the online petition online petition that we told you about in a previous blog. You should be very proud of your involvement as you have made a real difference to the lives of disabled people who depend on Disability Living Allowance to live their lives in the way they want.

But we cannot hang out the victory bunting just yet as the future of Attendance Allowance still hangs in the balance. Please continue to show your support of this campaign and help us to ensure that Attendance Allowance stays.

If you haven’t already, please sign the petition! sign the petition! and write to your local MP asking them to convey your concerns to the secretary of State for Health. Read the Disability Charities Consortium (DCC) statement. Read the Disability Charities Consortium (DCC) statement.


Don't let the campaign stop here - please pass this on to any of your friends or contacts that may wish to know.

Wednesday, 21 October 2009

enABLE 2009 - 6 -7th November 09

Date: 6 November 2009 to 7 November 2009
Location: Ricoh Arena, Coventry

The enABLE show focuses on helping people with disabilities or limited mobility to lead an active, independent and full life.

From advice on getting the right benefits, information on dedicated holidays and sports, education, employment to the latest gadgets and products to make like easier around the home - you’ll find it all under one roof at enABLE09.

There’s also the chance to meet the leading charities and associations as well as gaining expert one to one advice on benefit entitlements and even adapting your home. Plus the opportunity to gain inspiration at the popular seminars led by professionals, role models and everyday people.


Visit: http://www.enableshow.co.uk/

Monday, 19 October 2009

LDN Awareness Week 19 - 26th October

This week has been designated as LDN Awareness Week. The MS Trust supports more research for LDN, see their website at:

http://www.mstrust.org.uk/news/article.jsp?id=3286

Wednesday, 14 October 2009

Are You Interested in a Discounted Gym Membership?

Our Volunteer Fitness Instructor is in the process of negotiating special discounted gym memberships around the Reading area, if you are interested and would like further information please contact Vanessa on 07515 682554 of email fitnutstherapy@yahoo.co.uk

New! - 6 week Circuit Training with Vanessa Davis

This new weekly class will start on Tuesday 3rd November from 5.45pm to 6.30 p.m. and will run for 6 sessions.

The class will include a series of cardiovascular, toning and flexibility moves and would suit members who are able to stand unaided and are able to raise themselves up and down off the floor. Please come along and give it a try! Contact Vanessa on 07515 682554 or email fitnutstherapy@yahoo.co.uk if you have any queries or just come along and join in on the class.